sanfilipposyndrome hashtag performance
#SanfilippoSyndrome: Rare, devastating, progressive genetic disorder. Impacts brain function, leading to severe developmental delays, behavioral problems, and eventually, death. Raising awareness, research, hope.
3.4m
Facial features of Sanfilippo Syndrome typically include dark eyebrows that get stronger with age, c
567.8k
Sanfilippo Syndrome is a rare, terminal genetic disorder often referred to as “childhood Alzheimer
180.8k
The happiest girl☺️ #sanfilipposyndrome
93.4k
Stick around to see Sadie as a silly three-year-old. This girl has always made us laugh! 🤭 I’m
84.0k
62.8k
A good update for once!!!! 🙌🏻🙌🏻🙌🏻 Please repost 💜 #sanfilipposyndrome
61.5k
Replying to @Jennifer Liv has Sanfilippo Syndrome, also known as MPS type 3, or childhood Alzheimer�
57.2k
Liv is an amazingly special kiddo. I hope she brings a smile to your face. #sanfilipposyndrome #fyp
55.4k
Replying to @It’sTina93 we aren’t firing our pediatrician and are very happy with how she handle
55.1k
School update! Childhood Alzheimer’s, Sanfilippo Syndrome, is a neurodegenerative genetic conditio
44.5k
Common questions I get about Liv and Sanfilippo Syndrome. #sanfilipposyndrome #rarediseaseawareness
44.5k
38.9k
Replying to @The Sunshine Show Friday fun with our Cookie Monster! #cookiechallenge #sanfilipposyndr
37.5k
Liv was diagnosed with MPS type 3, also known as Sanfilippo Syndrome, three years ago. And when I wa
34.8k
34.2k
32.8k
My take on what’s been in the news with autism. My heart goes out to families with severely autist
30.1k
If you’ve been in the awful situation of having to tell a sibling about a grave diagnosis of their
30.0k
29.3k
Did you save your cord blood? Did anyone even tell you it was an option? #sanfilipposyndrome #saving
28.9k
Please consider reposting & commenting to say hello. That helps us reach more families. Don’t hesi
start an influencer campaign that drives genuine engagement
Technology
Fastest Growing