sanfilipposyndrome hashtag performance
#SanfilippoSyndrome: Devastating childhood disease, progressive neurodegeneration. Rare genetic disorder causing severe developmental delays, behavioral problems, and eventual death. Families fight tirelessly for research and hope.
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Liv has Sanfilippo Syndrome. It’s a neurodegenerative terminal genetic disorder with a life expect
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Prozac off label for Sanfilippo Syndrome, also known as childhood Alzheimer’s. #sanfilipposyndrome
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Sanfilippo Syndrome is Mucopolysaccharidosis type 3, a terminal genetic disorder. Life expectancy is
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Please help by reposting Liv’s story 💜 I want everyone to know the signs and symptoms of Sanfil
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We didn’t know if Sadie would ever walk after her severe brain hemorrhage at birth. We’re gratef
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Liv had MPS Type 3, Sanfilippo Syndrome. It’s like Alzheimer’s, but in children. Liv is 5, but c
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Holy fricken air ball #sanfilipposyndrome #holyfreakingairball
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The tent is from Adaptive Mall online, it’s called Safe Place Bed. Thank you @Saving Veda for the
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Liv has Mucopolysaccharidosis type 3, also known as Sanfilippo Syndrome. Is a neurodegenerative gene
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Thankful that we'll have plenty of opportunities to take her to the "Most Magical Place on Earth", b
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Cardiac issues in Sanfilippo Syndrome tend to manifest later in the disease, towards the last phase
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The slightest thought of that.. sucks. Sucks so much! #sanfilipposyndrome
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Liv’s terminal genetic disorder diagnosis was the beginning of many pivots for me and our family.
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Jumping on this trend of finding things to be grateful for. Liv’s terminal genetic disorder diagno
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