sanfilipposyndrome hashtag performance
#SanFilippoSyndrome on TikTok: heartbreaking stories, advocating for a cure, sharing daily struggles, celebrating precious moments, raising awareness, offering support, highlighting research progress, and showcasing resilient families fighting relentlessly.
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If you know us, you know our diagnosis story. It's proof that advocating and awareness is working!!
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I hope that sharing my anticipatory grief journey can help others. Whether they can relate, or feel
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The reality of Sanfilippo Syndrome, right now, is that it will take Liv’s life, regardless of a tr
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Liv has Sanfilippo Syndrome, a form of Childhood Alzheimer’s. It’s a neurodegenerative fatal gen
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Please help share Liv’s story today, for MPS Awareness. Please comment (that helps engage others a
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Are kids with Sanfilippo Syndrome in pain? Unfortunately yes. I’ve appreciated all the questions a
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What is Sanfilippo Syndrome? #sanfilipposyndrome #genetics #fyp #specialneedsparenting #terminalilln
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Traveling with a kiddo who elopes - send me all your advice or well wishes for good nights of rest f
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Sanfilippo Syndrome, aka MPS type 3, is also known as childhood dementia. Kids with this are born se
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Sharing our story comes with scrutiny, but at the end of the day, we are helping others, fundraising
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Sanfilippo Syndrome, aka Childhood Alzheimer’s is a fatal genetic disorder with a life expectancy
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Nature is medicine #bike #bikeride #florida #summervibes #summer #sunshine #sunshinestate #specialne
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Talk about a speechless, gut wrenching moment. #awarenessmatters #sanfilipposyndrome @Saving Liv
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Replying to @faaR7 Would we still have kids (naturally) if we knew ahead of time we were carriers?
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Replying to @Benny Every good southern girl adds an extra syllable or two to every word. *These vid
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