sanfilipposyndrome hashtag performance

#SanfilippoSyndrome: Rare, devastating childhood disease. Progressive brain damage, developmental delays, hyperactivity, seizures, loss of skills, eventual death. Families fight tirelessly for research, hope, and awareness.

Facial features of Sanfilippo Syndrome typically include dark eyebrows that get stronger with age, c

Facial features of Sanfilippo Syndrome typically include dark eyebrows that get stronger with age, c

Story time of our waiting game to find out if Liam had Sanfilippo Syndrome too, like Liv. #sanfilipp

Story time of our waiting game to find out if Liam had Sanfilippo Syndrome too, like Liv. #sanfilipp

Sadie loved singing, and now, to see the confusion in her eyes when she can’t get the words out is

Sadie loved singing, and now, to see the confusion in her eyes when she can’t get the words out is

The three phases of Sanfilippo Syndrome, aka childhood Alzheimer’s. Life expectancy is mid to late

The three phases of Sanfilippo Syndrome, aka childhood Alzheimer’s. Life expectancy is mid to late

Replying to @Caden Answering this comment as apparently multiple people weren’t listening. #sanfil

Replying to @Caden Answering this comment as apparently multiple people weren’t listening. #sanfil

Liv was diagnosed with MPS type 3, also known as Sanfilippo Syndrome, three years ago. And when I wa

Liv was diagnosed with MPS type 3, also known as Sanfilippo Syndrome, three years ago. And when I wa

We try to keep Sadie’s childhood as normal as possible, but it’s getting increasingly difficult

We try to keep Sadie’s childhood as normal as possible, but it’s getting increasingly difficult

Childhood Alzheimer’s has taken a lot from Liv already, but despite that she is happy, and helping

Childhood Alzheimer’s has taken a lot from Liv already, but despite that she is happy, and helping

Why most kids with SF have coarse, thick hair. #sanfilipposyndrome #genetics #fyp #childhoodalzheime

Why most kids with SF have coarse, thick hair. #sanfilipposyndrome #genetics #fyp #childhoodalzheime

Replying to @Shenanigans 🇨🇦 answering some of the most common questions we got recently. Thank

Replying to @Shenanigans 🇨🇦 answering some of the most common questions we got recently. Thank

Replying to @Jennifer Liv has Sanfilippo Syndrome, also known as MPS type 3, or childhood Alzheimer�

Replying to @Jennifer Liv has Sanfilippo Syndrome, also known as MPS type 3, or childhood Alzheimer�

Replying to @kryssaloü also our GI doctor ordered the genetics consult two days before the friend t

Replying to @kryssaloü also our GI doctor ordered the genetics consult two days before the friend t

Liv is an amazingly special kiddo. I hope she brings a smile to your face. #sanfilipposyndrome #fyp

Liv is an amazingly special kiddo. I hope she brings a smile to your face. #sanfilipposyndrome #fyp

Replying to @Lisa pizza In the family? #genes #genetics #family #familytree #sanfilipposyndrome #r

Replying to @Lisa pizza In the family? #genes #genetics #family #familytree #sanfilipposyndrome #r

Please help share Liv’s story today, for MPS Awareness. Please comment (that helps engage others a

Please help share Liv’s story today, for MPS Awareness. Please comment (that helps engage others a

School update! Childhood Alzheimer’s, Sanfilippo Syndrome, is a neurodegenerative genetic conditio

School update! Childhood Alzheimer’s, Sanfilippo Syndrome, is a neurodegenerative genetic conditio

It’s gonna be May, which means MPS Awareness Day is coming up on the 15th. I love *NSYNC, so “we

It’s gonna be May, which means MPS Awareness Day is coming up on the 15th. I love *NSYNC, so “we

#sanfilippoawareness #childhooddementia #sanfilipposyndrome #britneyspears #haircut #scissors #speec

#sanfilippoawareness #childhooddementia #sanfilipposyndrome #britneyspears #haircut #scissors #speec

Replying to @🌸Jules🌸 I may be biased, but this has always been one of my favorite Sadie words.

Replying to @🌸Jules🌸 I may be biased, but this has always been one of my favorite Sadie words.

Replying to @The Sunshine Show Friday fun with our Cookie Monster! #cookiechallenge #sanfilipposyndr

Replying to @The Sunshine Show Friday fun with our Cookie Monster! #cookiechallenge #sanfilipposyndr

Talk about a speechless, gut wrenching moment. #awarenessmatters #sanfilipposyndrome @Saving Liv

Talk about a speechless, gut wrenching moment. #awarenessmatters #sanfilipposyndrome @Saving Liv

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