Kyra

childhooddementia hashtag performance

#ChildhoodDementia: Sharing the heartbreaking realities, raising awareness for rare diseases. Families navigate loss, early-onset symptoms, seeking support, hoping for breakthroughs, remembering precious moments, and fighting for a cure.
#storytime #amazonalexa #sanfilipposyndrome #childhooddementia #childhoodalzheimers #alzheimers #bed
142.5k
#storytime #amazonalexa #sanfilipposyndrome #childhooddementia #childhoodalzheimers #alzheimers #bed
We waited three long years after Sadie’s diagnosis to get her into a clinical trial—three years
47.5k
We waited three long years after Sadie’s diagnosis to get her into a clinical trial—three years
Has all the potiental😊🫶🏼 #Sanfilipposyndrome #childhooddementia #genetics #mamagrief
17.1k
Has all the potiental😊🫶🏼 #Sanfilipposyndrome #childhooddementia #genetics #mamagrief
#greenscreen @Voodoo Doughnut #yummy #sanfilipposyndrome #loveforlivi #childhooddementia #curesanfil
11.7k
#greenscreen @Voodoo Doughnut #yummy #sanfilipposyndrome #loveforlivi #childhooddementia #curesanfil
@💙Kenny💙( matts version) you're the best big sister and I am so proud of you and your beautifu
9.0k
@💙Kenny💙( matts version) you're the best big sister and I am so proud of you and your beautifu
#update #storytime #sanfilipposyndrome #cognitive #loveforlivi #medicallycomplex #terminal #childhoo
7.6k
#update #storytime #sanfilipposyndrome #cognitive #loveforlivi #medicallycomplex #terminal #childhoo
#motherdaughter #curesanfilipposyndrome #childhooddementia #terminal #loveforlivi #cognitivedelay #c
7.6k
#motherdaughter #curesanfilipposyndrome #childhooddementia #terminal #loveforlivi #cognitivedelay #c
#loveforlivi #cavity #dentist #checkup #liverdisease #sanfilipposyndrome #childhooddementia #momguil
5.3k
#loveforlivi #cavity #dentist #checkup #liverdisease #sanfilipposyndrome #childhooddementia #momguil
#nature #fishing #outdoors #sanfilipposyndrome #childhooddementia #fyp #trending
4.5k
#nature #fishing #outdoors #sanfilipposyndrome #childhooddementia #fyp #trending
Which do you think this video offers evidence for the most? Music therapy offers a wide range of ben
294.0
Which do you think this video offers evidence for the most? Music therapy offers a wide range of ben

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