sanfilippo hashtag performance
#Sanfilippo: A hashtag spotlighting the rare, devastating genetic disease. Raising awareness, sharing stories of affected children, advocating for research, offering support, and building a global community battling this cruel condition.
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Sanfilippo Syndrome is a rare, terminal genetic disorder often referred to as “childhood Alzheimer
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Replying to @markdavis3521 Before it took over. #sanfilippo #befor #skills #regression #words #speec
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Haidyn is Veda's Sanfilippo Sister. She is the main reason we were able to get Veda diagnosed so you
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That went downhill fast 😅🍪 #cookiechallenge #sanfilippo
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This was the perfect Easter basket for Sadie lady! 🐇 Thank you to Sierra (Daddy’s fiancé) for
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An early Easter egg hunt with the cousins! I love seeing Sadie enjoy typical kid activities like swi
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Replying to @takethehill_mm thank you for the question 💜 #sanfilippo #sanfilipposyndrome
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My daughter has Sanfilippo Syndrome—it's rare, it's fatal, and there's no cure yet. But I’m not
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My husband is the strongest, most selfless man I know. Every day, he pours his love and energy into
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When your child has a terminal illness, your emotional priorities shift dramatically—what once mat
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She's the most beautiful girl in the world #sanfilippo #mirror #beauty #beautiful #brave #strong #va
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