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sanfilippo hashtag performance
#Sanfilippo highlights Sanfilippo Syndrome, a rare, devastating neurodegenerative disease. It fosters community, shares stories of affected children, raises awareness, and advocates for research towards a cure.
200.2k
Replying to @cay peters Not everyone can be independent.
#disability
#independent
#braindamage
#noc
158.9k
Replying to @liv_gruss Updated life expectancy?
#life
#timeline
#sanfilippo
#liveinthemoment
115.4k
Replying to @CertifiedFreak Itβs actually a pretty common treatment for different types of cancer
112.9k
Nature is medicine
#bike
#bikeride
#florida
#summervibes
#summer
#sunshine
#sunshinestate
#specialne
16.7k
was i not what you were expecting?
#deaf
#mom
#humor
#livinginthemoment
#sanfilippo
16.1k
#sanfilippo
#trend
#fyp
11.0k
#alliwant
#cure
#sanfilippo
#trending
@Jen #
9.9k
#hospitallife
#seattle
#sanfilippo
#xyzbca
9.2k
#countingbluecars
#dishwalla
#nostalgia
#tellme
#cure
#sanfilippo
8.6k
#thousandyears
#savingryder
#sanfilippo
#xyzbca
#signedcover
#sign
7.8k
I may not be able to
#savingryder
but his story may help another family
#sanfilippo
4.6k
When I first heard about this study it blew my mind π€―
#sanfilipposyndrome
#sanfilippo
#didyouknow
4.2k
#onthisday
#sanfilippo
#sanfilipposyndrome
#funny
#family
3.8k
Replying to @chickenwanter
#sanfilipposyndrome
#sanfilippo
#veda
#save
#fund
#greenscreenvideo
3.7k
Replying to @sugarhoneybooboo My names not Neo, I ain't the One.
#mom
#sanfilippo
#educateyourself
3.3k
My sweet Veda
#sanfilipposyndrome
#sanfilippo
#beach
#florida
3.2k
I ain't too proud to beg! @Yung Gravy π―
#yung
#gravy
#yunggravy
#hymns
#bills
#sanfilippo
#sanfil
3.1k
Thank you @Make-A-Wish
#makeawish
#disney
#donuts
#sanfilippo
#sanfilipposyndrome
#disneyworld
3.0k
#rude
#sanfilippo
#dh
2.9k
Replying to @divnasky
#sanfilippo
#sanfilipposyndrome
#signs
#symptoms
#diagnosis
#disability
#mps
#
2.2k
We wanted 3 children π
#sanfilippo
#sanfilipposyndrome
#baby
#allthatshewants
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