Kyra

sanfilippo hashtag performance

#Sanfilippo highlights Sanfilippo Syndrome, a rare, devastating neurodegenerative disease. It fosters community, shares stories of affected children, raises awareness, and advocates for research towards a cure.
Replying to @cay peters  Not everyone can be independent. #disability #independent #braindamage #noc
Replying to @liv_gruss Updated life expectancy? #life #timeline #sanfilippo #liveinthemoment
Replying to @CertifiedFreak  It’s actually a pretty common treatment for different types of cancer
115.4k
Replying to @CertifiedFreak It’s actually a pretty common treatment for different types of cancer
Nature is medicine #bike #bikeride #florida #summervibes #summer #sunshine #sunshinestate #specialne
was i not what you were expecting? #deaf #mom #humor  #livinginthemoment  #sanfilippo
#sanfilippo #trend #fyp
#alliwant #cure #sanfilippo  #trending  @Jen  #
#hospitallife  #seattle  #sanfilippo  #xyzbca
#countingbluecars #dishwalla #nostalgia  #tellme #cure  #sanfilippo
#thousandyears  #savingryder  #sanfilippo  #xyzbca  #signedcover  #sign
I may not be able to #savingryder but his story may help another family #sanfilippo
7.8k
I may not be able to #savingryder but his story may help another family #sanfilippo
When I first heard about this study it blew my mind 🀯 #sanfilipposyndrome #sanfilippo #didyouknow
#onthisday #sanfilippo #sanfilipposyndrome #funny #family
Replying to @chickenwanter #sanfilipposyndrome #sanfilippo #veda #save #fund #greenscreenvideo
Replying to @sugarhoneybooboo My names not Neo, I ain't the One. #mom #sanfilippo #educateyourself
My sweet Veda #sanfilipposyndrome #sanfilippo #beach #florida
I ain't too proud to beg! @Yung Gravy 🍯 #yung #gravy #yunggravy #hymns #bills #sanfilippo #sanfil
Thank you @Make-A-Wish #makeawish #disney #donuts #sanfilippo #sanfilipposyndrome #disneyworld
#rude #sanfilippo #dh
Replying to @divnasky #sanfilippo #sanfilipposyndrome #signs #symptoms #diagnosis #disability #mps #
We wanted 3 children πŸ’œ #sanfilippo #sanfilipposyndrome #baby #allthatshewants

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