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sanfilippo hashtag performance
#Sanfilippo: Hopeful, devastating. Raising awareness. Sharing stories of children with this rare, terminal disease. Community support, research funding, and finding a cure. Fighting for a brighter future.
147.1k
Most popular questions of the week!
#lovelogan
#question
#answer
#sanfilippo
#themoreyouknow
#popula
77.7k
Take a minute and think.
#lovelogan
#sanfilippo
#thanks
?
16.8k
Take a walk with us
#sanfilippo
#sanfilipposyndrome
#walk
#spring
10.5k
#learnsomethingnew
#mucopolysaccharidosis
#sanfilippo
#linktree
#signlanguage
7.6k
#rydervolt
#rydersride
#myhero
#sanfilippo
#fyp
1.9k
Videos from just a yeat ago have become hard to watch. Sanfilippo syndrome moves fast and takes our
1.6k
#grief
#anticipatorygrief
#sanfilippo
#sanfilipposyndrome
#lifechanging
1.5k
This life is anything but easy. We make it work though and we keep fighting
#sanfilippo
#parenting
#
1.5k
Let it be me, who fails me.
#welles
#letitbe
#sanfilippo
#sanfilipposyndrome
#terminal
#specialneeds
1.5k
Go F*** yourself, George
#disability
#sanfilippo
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