ehlersdanlosawareness hashtag performance
#EhlersDanlosAwareness: Raising visibility, educating about rare connective tissue disorders. Sharing stories, promoting support, and advocating for diagnosis, research, and a better quality of life.
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This patient had an ACDF but because of EDS Syndrome she now has... #drcyr #saspine #ehlersdanlos #e
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Honestly I could write like 50 of these, I might need to do a part 2 😅 #ehlersdanlossyndrome #ehl
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this isn’t my usual type of post, but the entire point of my account is to raise awareness of chro
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hEDS and long covid have taken so much from me but I'm thankful I'm still here another day to make t
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has this happened to anyone else? …hoping this gets on the right side of tiktok! . . . . . . . . #
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Replying to @Layne Just found the video I took showing what the injections did to my knee and it�
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No matter how much I advocate I still feel so misunderstood by able-bodied people. But sharing for a
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This May, please advocate for not only hEDS, but for all types of EDS. #ehlersdanlos #ehlersdanlossy
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It just hit me that maybe I would be able to do a job in the water? I can't walk, I can't stand, I d
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Some of my daily struggles with Ehlers Danlos syndrome. #ehlersdanlos #ehlersdanlossyndrome #ehlersd
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Almost 8 months since my open abdominal MALS repair! ✂️🎉❤️ For those of you who do not kn
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Rollators are a great tool and often the first mobility aid people get. But they aren't for everyone
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Not like falling to the ground from a hip dislocation is all that disabled. It’s almost like I kno
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39% of people with EDS or HSD meet the diagnostic criteria for autism (Carolina Baeza-Velasco et al.
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Mobility aid users unite!! #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #ehlersdanloss
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If you didn't figure out by now it's obviously April Fools 🫢😉 It took me 21 years to get a dia
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Some of us don’t have the privilege of saying things like my disability doesn’t limit me or talk
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