geneticdisorder hashtag performance
The hashtag #geneticdisorder on TikTok showcases personal stories, awareness, education, advocacy, community support, challenges, resilience, health journeys, genetic conditions, empathy, inspiration, informative content, shared experiences, awareness campaigns, and inclusivity.
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Having a child with a genetic overgrowth syndrome makes them leave that “little” baby stage so fast…. Hes only 7 months old but wears 2t clothes… slow down baby… Edit: some kids are just big even without having this syndrome! BWS has a lot of other underlying Issues besides size 💛💚#beckwithwiedemannsyndrome #geneticdisorder #foryoupage❤️❤️ #awareness #babysoftiktok #medicallycomplex #overgrowthdisorder #MomsofTikTok #baby
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Day 2 of recovery, so far we were thinking “okay, this isn’t so bad. What was everyone talking about?” Only to be given a very big awakening come 5am the next morning. I’ll share that story in the day 3’s video❤️ #fyp #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgery #picu
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Replying to @Rosa💀🖤 thank you for brining this up bit it’s important to jote that just becuase a child might have predominant eyebrows and a low nasal bridge. It does not mean that they have Sanfilippo syndrome which mnay parents are now worried about. #sanfilipposyndrome #thelook #facialfeatures #genetic #phenotype #attenuated #sanfilippoawareness #raredisease #rarediseaseawareness #medicaladvocacy #caregiverlife #specialneedsmom #momlifeunfiltered #geneticdisorder #disabilityawareness #notjustalook #diagnosisjourney #rarediseasecommunity #specialneedsadvocate #undiagnosed #medicalmom #rarediseasewarrior #advocatelikeamother #specialneedsawareness #invisibleillness
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Tongue reduction day 4. This is a longer video but I didn’t want to leave out any details ❤️ #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok #fyp
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Travel day 💛💚 up at 2:30am and two flights later, we made it across the country. #beckwithwiedemannsyndrome #geneticdisorder #foryoupage❤️❤️ #awareness #babysoftiktok #medicallycomplex #overgrowthdisorder #macroglossia #tonguereduction
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Samuel’s sleep study prep and results ❤️ #fyp #beckwithwiedemannsyndrome #geneticdisorder #foryoupage❤️❤️ #awareness #babysoftiktok #medicallycomplex #overgrowthdisorder #macroglossia #tonguereduction #sleepstudy
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Tongue Reduction Surgery: (I had to delete and repost and I lost 3 very kind comments, sorry!) I know its taking me awhile to get these posted. Its hard looking back and honestly I feel like my brain blocked a lot of the memories due to the stress. #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #fyp #foryoupage❤️❤️ #tonguereduction
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WHATTT!!! 9 days until we leave for Texas!! 🥺❤️ TikTok has changed my life!! #trending #dentalimplants #awareness #geneticdisorder #ectodermaldysplasia #texassedationdental
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Samuel Tongue Reduction surgery day 1 #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #baby #tonguereduction #babysoftiktok #surgerytiktok #fyp #foryoupage
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These two days leading up to his surgery were very emotional but also bittersweet. We knew we were approaching something very difficult as parents and we knew Sam was going to go through something that could possibly be traumatic. My husband and I leaned on each other hard, we rested, and we did our best to enjoy that time. #fyp #baby #beckwithwiedemannsyndrome #geneticdisorder #foryoupage❤️❤️ #awareness #medicallycomplex #overgrowthdisorder #macroglossia #tonguereduction
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Sharing Samuel’s journey has been eye opening to the hearts of others…thats for sure. But I just block and move on ❤️ he gets 50 loving comments for every 1 awful comment and his internet Aunties always stand up for him 🥰 #whatanoddthingtosay #fyp #beckwithwiedemannsyndrome #geneticdisorder #foryoupage❤️❤️ #awareness #babysoftiktok #medicallycomplex #overgrowthdisorder #macroglossia #tonguereduction
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Doing hours and hours of medical tasks every single day just to keep myself alive is beyond exhausting. These illnesses need more awareness and more treatments!🎗️@Roller Rabbit @Dexcom US #fyp #chronicillness #chronicillnessawareness #EDS #foryoupage #edsawareness #hedsawareness #chronicpain #vascularcompressionsyndromes #vascularcompression #centralline #tpn #totalparenteralnutrition #centrallineawareness #dexcom #dexcomg6 #hypoglycemicawareness #hypoglycemia #hypoglycemic #intestinalfailure #intestinaldysmotility #gastroparesis #gastroparesisawareness #pots #mcas #foryoupage #feedingtube #feedingtubeawareness #feedingtubelife #heds #geneticdisorder #geneticmutation #HEDS #gtube #jtube #surgicalfeedingtube #surgery #gjfeedingtube #heds #HEDS
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Are we victims to jeans that have been passed down through our family? Or do they only exist as possibilities? Metaphysical Hour on YouTube-“Discuss demonstration cases from recent classes” ##spirituality##genetics##qhht##geneticdisorder##hypnosis##dolorescannon##spiritual##reincarnation##healthcare##pastliferegression##dolorescannonteachings##dolorescannonmethod
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2024…The year I became a NICU mom and became the mother to a medically complex child. I learned more medical lingo than I ever wanted to . My brain is now overflowing with information on genetics, medical terminology, syndromes, cancer risks, surgeries, etc. BUT GOD sustained us through 2024 and I have faith he will do the same in 2025. Happy new year ❤️ #newyearseve #fyp #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #baby #babysoftiktok #nicu #nicubaby #nicumom
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You were saying? This person has since apologized for her ignorant comment on my instagram’s “what an odd going to say” video. But I’ll never not stand up for my Samuel. #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #fyp
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EEKKK!!! IM SO EXCITED!! We are in the 20's now!! 29 days ❤️ I actually don't sleep like a baby bc im so excited I can't hardly sleep lol #dentalimplants #allon4 #ectodermaldysplasia #geneticdisorder #awareness #educating #trending #bekind #kindnessisfree #isleeplikeababy #zachtop
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It's just our little way of making the tooth fairy inclusive to both of our kids because she will GET more teeth than she will LOSE. ❤️ It works for us, that's all that matters. She will never be left out. Things may look a little different, but she will experience it in her own special way! 😊 #ectodermaldysplasia #geneticdisorder #awareness #toothfairy #inclusion #inclusive #trending #different #uniqueisbeautiful
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I have been called so many names because of the appearance of my teeth... In 35 days that will no longer be a burden to me because of Dr Kendall. THANK YOU!! In 35 days when people see me the first thing they see won't be rotting or missing teeth, they'll see beautiful teeth. 35 days.. If you have bad teeth you KNOW how mean people are to you over it and how badly you are treated #grateful #ectodermaldysplasia #geneticdisorder #awareness #advocating #badteeth #relatable #dentalimplants #texassedationdental
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& I am so grateful for everything that led me to this day... ❤️ 29 days until we go on this journey of receiving dental implants!! 😊 #dentalwork #dentisttok #implants #dentalimplants #ectodermaldysplasia #geneticdisorder #awareness #badteeth #saynotobullying #loveyourself #ultimatesmilegiveaway #beafriend #trolls #stopbullying #bethereasonsomeonesmiles #perfectlyimperfect
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