Kyra

geneticdisorder hashtag performance

#geneticdisorder connects individuals sharing experiences, raising awareness, fostering support, educating communities, promoting research, encouraging acceptance, discussing challenges, celebrating uniqueness, advocating for care, inspiring resilience, and highlighting personal stories.
Day 2 of recovery, so far we were thinking “okay, this isn’t so bad.  What was everyone talking about?” Only to be given a very big awakening come 5am the next morning.  I’ll share that story in the day 3’s video❤️ #fyp #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgery #picu
Tongue Reduction day 3  #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok
Tongue reduction day 4.  This is a longer video but I didn’t want to leave out any details ❤️ #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok #fyp
Another day making my favorite human some yummy food options. The only thing he was not into today was the avocado. He has never liked avocado, but I’m hoping if I keep offering it he will eat it some day! #phenylketonuria #pku #toddler #pkuawareness #pkumom #lowproteindiet #geneticdisorder #lowprotein #lowproteincooking #violifecheese #violife #pkucooking #fyp #toddlereats #food #foodtiktok #FoodTok
#trending #dentalimplants #allon4 #ectodermaldysplasia #geneticdisorder #awareness #badteeth #saynotobullying #loveyourself #ultimatesmilegiveaway #texassedationdental #smilemakeover #patient #waitingmyturn #results #transformation #transition
Samuel Tongue Reduction surgery day 1 #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #baby #tonguereduction #babysoftiktok #surgerytiktok #fyp #foryoupage
day 2 update #trending #update #newsmilenewlife #texassedationdental #ectodermaldysplasia #geneticdisorder #smilemakeover #update #grateful #tiktokchangedmylife #allon4 #allon6 #allonx #dentures #veneers #crowns #toothless #noteeth
WHATTT!!! 9 days until we leave for Texas!! 🥺❤️ TikTok has changed my life!! #trending #dentalimplants #awareness #geneticdisorder #ectodermaldysplasia #texassedationdental
Dental Implants update!! We made it, had a great smooth 8 hour drive from Alabama to Texas #trending #dentalimplants #allon4 #ectodermaldysplasia #geneticdisorder #awareness #badteeth #childhooddream #ultimatesmilegiveaway #texassedationdental #smilemakeover
Life is forever changed. Thank you Dr Kendall at Texas Sedation Dental ❤️ #newsmilenewlife #dentalimplants #allon4 #postop #allon6 #trending #alabama #texas #longviewtexas #ectodermaldysplasia #awareness #geneticdisorder #raredisorder #smilemakeover
I’m sorry it’s taken me awhile to get this update out! If anyone was unaware, these videos are old.  I waited to tell the story until after we were safely back home.  #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok #fyp
2024…The year I became a NICU mom and became the mother to a medically complex child.  I learned more medical lingo than I ever wanted to . My brain is now overflowing with information on genetics, medical terminology, syndromes, cancer risks, surgeries, etc.  BUT GOD sustained us through 2024 and I have faith he will do the same in 2025.  Happy new year ❤️ #newyearseve #fyp #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #baby #babysoftiktok #nicu #nicubaby #nicumom
You were saying?  This person has since apologized for her ignorant comment on my instagram’s  “what an odd going to say” video.  But I’ll never not stand up for my Samuel.   #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #macroglossia #fyp
1 week!!! #tiktok #kindness #stopbullying #advocating #ectodermaldysplasia #geneticdisorder #awareness #badteeth #dentalimplants #allon4
I’m so proud of my BWS warrior 💛💚 #beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #macroglossia #overgrowthdisorder #tonguereduction #surgerytiktok #fyp
The dark days are over..❤️❤️❤️ 2 days until travel, 4 days until surgery!!   #dentalimplants #countdown #transformation #transition #smilemakeover #patient #ectodermaldysplasia #geneticdisorder #awareness #educating #texas #travel #myjourney #ourjourney #mystory #ourstory #grateful #tiktokchangedmylife
#smilemakeover #raredisorder #geneticdisorder #update #healing #ectodermaldysplasia #geneticdisorder #awareness #educating #advocating #myjourney #mystory #ourjourney #myjourney #allon4 #allonx #allon6 #implants #dentures #kindness #fullmouthrestoration
#day3 #allon6 #allon4 #allonx #ectodermaldysplasia #geneticdisorder #missingteeth #awareness #kindness #stopbullying #makeafriend #educating #trending #learning #texassedationdental #smilemakeover #ultimatesmilegiveaway #lifechanging #beforeandafter #HealingJourney
1 week update ❤️❤️ they're so beautiful #dentalimplants #allon4 #trending #myjourney #ourstory #mystory #ectodermaldysplasia #geneticdisorder #awareness #educating #allon6 #procedure #surgery #update #weeklyupdate #fullmouthrestoration #smilemakeover
come follow on insta katecriswell8 #implants #surgery #update #newsmilenewlife #trending #byetiktok #farewell #dentalimplants #allon4 #ectodermaldysplasia #geneticdisorder #awareness #educating
#beckwithwiedemannsyndrome #geneticdisorder #awareness #medicallycomplex #overgrowthdisorder #tonguereduction #fyp

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