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hlhs hashtag performance
#HLHS: Heart condition awareness. Support, stories, and hope. Sharing experiences of Hypoplastic Left Heart Syndrome. Advocacy, babies, and families navigating this complex congenital defect. Strength, love, and resilience.
527.0k
37 days post heart transplant. Be still my heart. Giving God the glory!!!! 🙌🏾🙏🏾🫶🏾
301.8k
i will always trust God knows what He is doing! two open heart surgeries and one (hopefully) more to
41.1k
God is good all of the time✝️🤍
#surgery
#halfaheart
#hlhs
#hypoplasticleftheartsyndrome
#pray
33.4k
Life at home…. Almost 2 month post heart transplant! 🙌🏾 Thank you to Ethan’s donor for the
27.4k
God you’ve been so so GOOD!!!! Ethan was discharged from the Cardiac Intensive Care Unit yesterday
22.8k
My mama heart is aching….😔 Ethan was scheduled for a routine Cath this morning which led to ano
19.3k
Today was our second of many post transplant visits. I’m so happy to share that Ethan’s heart fu
16.8k
Won’t he do it!!! Ethan is home and resting from his Cath Procedure. Thank you all for the continu
11.7k
🤷🏼♀️🤷🏼♀️🤷🏼♀️
#fyp
#foryou
#boymom
#momtok
#babytok
#toddlerto
11.2k
i am so grateful he can’t remember his surgeries..but i remember every second of it all. all the m
8.1k
Thank you so much to all our new followers! We're so grateful to have you here as we share this beau
2.3k
Thank you all for the continued love and support!!!!!
#heartmom
#hearttransplant
#hearttransplantrec
2.2k
needless to say he did not love the dentist🙃
#dentist
#funny
#halfaheart
#babyboy
#viral
#trendin
1.6k
It’s crazy how much your life can change in such a short period of time. Life post heart transplan
877.0
Replying to @Roisin Fitzgerald mean girl energy to a 3 year old? weird.
#godisgood
#miracle
#pray
#j
738.0
Mark Jr loved playing doctor with Wolfie yesterday! No ow’s!
#doctor
#pretendplay
#hlhs
#hearttran
699.0
Our cicu stay was the loneliness time of my life. I was suffering, but people were so caught up with
520.0
sweetest cutest tiny baby!
#babyboy
#surgery
#halfaheart
#miracle
#viral
#trending
#hypoplasticlefth
503.0
Beating the odds one step at a time🫀
#hlhs
#hlhswarrior
#hlhssurvivor
#hlhsawareness
#chd
#chdawa
86.0
#hlhs
#hlhswarrior
#hlhssurvivor
#hlhsawareness
#chd
#chdawarness
#chdwarrior
#medicallycomplex
#dis
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