hlhsawareness hashtag performance
Raising awareness for Hypoplastic Left Heart Syndrome. Sharing stories, support, advocacy, education, and the realities of living with HLHS. Hope, resilience, and celebrating CHD warriors and families.
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I was always told that Ethan’s heart function would decline slowly over time. I never thought it c
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Ethan’s Cath procedure went well. He’s back in his room resting. The pressures in his heart are
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Some days are just harder than others. Today was a hard day. After 13 hours in the hospital today, I
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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you,
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When God chooses your content. #CapCut #hearttransplant #chdawarness #hospitallife #chd #HLHS #icu #
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I’m currently juggling home life and caregiving. Some days I find it difficult to navigate the emo
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This week Ethan has made great progress in recovery. He’s been up and walking with support around
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Watching Ethan experience ICU Delirium has been so heavy on my heart. I’m with him every day, yet
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This came up on my Facebook memory today. He’s always been so full of life!!! Mama loves you Ethan
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For 33 long days, I prayed fervently for God to bring Ethan back to me. Watching him endure ICU deli
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Talking about Hypoplastic Left Heart Syndrome #HLHS #chd #hlhsawareness #chronicillness #chronically
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