idiopathicintracranialhypertension hashtag performance

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#sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #jacksonmemorial #brainsurgerysurvivor #idiopathicintracranialhypertension #glossopharyngealneuralgia #trigeminalneuralgia #stuartflorida #martincountyfl #universityofmiami

#sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #jacksonmemorial #brainsurgerysurvivor #idiopathicintracranialhypertension #glossopharyngealneuralgia #trigeminalneuralgia #stuartflorida #martincountyfl #universityofmiami

Replying to @sam IIH FAM LETS GO Starting a series where i talk about living with a #rareneurologicaldisorder called #idiopathicintracranialhypertension #chronicallyill

Replying to @sam IIH FAM LETS GO Starting a series where i talk about living with a #rareneurologicaldisorder called #idiopathicintracranialhypertension #chronicallyill

Sometimes I wonder the things I could accomplish if IIH didn’t set me back just a little. Idiopathic Intracranial Hypertension (IIH) is a rare brain disease where your body mimics you having a brain tumor… You just don’t have one. My head and my face are often full of spinal fluid, which puts pressure on everything… including my vision. I never realized how important my vision was until this. It’s something we never think about and we often overlook. But, it still doesn’t stop me… Me and my spinal fluid are besties… Tons of love to my fellow IIH, endometriosis, Ehlers-Danlos, and all the invisible illness warriors ❤️ ##idiopathicintracranialhypertension##iih##invisibleillness##ehlersdanlossyndrome##ehlersdanlos##eds

Sometimes I wonder the things I could accomplish if IIH didn’t set me back just a little. Idiopathic Intracranial Hypertension (IIH) is a rare brain disease where your body mimics you having a brain tumor… You just don’t have one. My head and my face are often full of spinal fluid, which puts pressure on everything… including my vision. I never realized how important my vision was until this. It’s something we never think about and we often overlook. But, it still doesn’t stop me… Me and my spinal fluid are besties… Tons of love to my fellow IIH, endometriosis, Ehlers-Danlos, and all the invisible illness warriors ❤️ ##idiopathicintracranialhypertension##iih##invisibleillness##ehlersdanlossyndrome##ehlersdanlos##eds

Replying to @seventhsixchic It’s why I take Mounjaro still. Idiopathic Intracranial Hypotension/ IIH and Mounjaro / Tirzepatide. It can help you! #iih #idiopathicintracranialhypertension #psuedotumor #neurologicaldisorder #tirzepatide #mounjaro @Join Amble

Replying to @seventhsixchic It’s why I take Mounjaro still. Idiopathic Intracranial Hypotension/ IIH and Mounjaro / Tirzepatide. It can help you! #iih #idiopathicintracranialhypertension #psuedotumor #neurologicaldisorder #tirzepatide #mounjaro @Join Amble

If the shunts had more of a success rate & were lifetime I would 100% do it. Buttttt often they have to be replaced several times and I’m only 26 😪😭🧠📈 #iih #idiopathicintracranialhypertension #headaches #opticnerveswelling #tinnitus #highpressureheadaches #visionissues #ophthalmology

If the shunts had more of a success rate & were lifetime I would 100% do it. Buttttt often they have to be replaced several times and I’m only 26 😪😭🧠📈 #iih #idiopathicintracranialhypertension #headaches #opticnerveswelling #tinnitus #highpressureheadaches #visionissues #ophthalmology

Replying to @The Lash Remedy this is my experience!!! Check out @The Migraine Doc and @Dr. Granger Brown and continue to advocate for yourself and keep your health care professionals in the loop!! Sending you so much love, sorry you’re one of us now!!! 🫠 but at least you’re in good company!!! (Sorry jokes are my coping strategy!) #iih #intercranialhypertension #idiopathicintracranialhypertension #uppercervicalchiropractor #fy #info

Replying to @The Lash Remedy this is my experience!!! Check out @The Migraine Doc and @Dr. Granger Brown and continue to advocate for yourself and keep your health care professionals in the loop!! Sending you so much love, sorry you’re one of us now!!! 🫠 but at least you’re in good company!!! (Sorry jokes are my coping strategy!) #iih #intercranialhypertension #idiopathicintracranialhypertension #uppercervicalchiropractor #fy #info

#sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #jacksonmemorial #idiopathicintracranialhypertension #covidlonghauler #brainsurgerysurvivor #mvd #glossopharyngealneuralgia #trigeminalneuralgia

#sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #jacksonmemorial #idiopathicintracranialhypertension #covidlonghauler #brainsurgerysurvivor #mvd #glossopharyngealneuralgia #trigeminalneuralgia

Shunt placement for Intracranial Hypertension (Right Sided Ventriculoperitoneal Shunt) #sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #idiopathicintracranialhypertension #glossopharyngealneuralgia #brainsurgerysurvivor #covidlonghauler #stuartflorida

Shunt placement for Intracranial Hypertension (Right Sided Ventriculoperitoneal Shunt) #sharjosie #brainsurgery #fourbrainsurgeries #armymom #cerebralshunt #microvasculardecompression #iih #idiopathicintracranialhypertension #glossopharyngealneuralgia #brainsurgerysurvivor #covidlonghauler #stuartflorida

Replying to @emilypallotto i agree girl!! it has helped so much! #iih #intercranialhypertension #idiopathicintracranialhypertension #uppercervicalchiropractor #fyp

Replying to @emilypallotto i agree girl!! it has helped so much! #iih #intercranialhypertension #idiopathicintracranialhypertension #uppercervicalchiropractor #fyp

Replying to @Tim Forbush Jr. the meaning of idiopathic is occurring spontaneously or for unknown cause, which honestly makes things even more frustrating because there’s no actual fix. Just handling the symptoms & hoping it eventually goes away 😪🧠 #iih #pseudotumorcerebri #idiopathicintracranialhypertension #headaches #opticnerveswelling #tinnitus

Replying to @Tim Forbush Jr. the meaning of idiopathic is occurring spontaneously or for unknown cause, which honestly makes things even more frustrating because there’s no actual fix. Just handling the symptoms & hoping it eventually goes away 😪🧠 #iih #pseudotumorcerebri #idiopathicintracranialhypertension #headaches #opticnerveswelling #tinnitus

Replying to @Teresa my idiopathic intracranial hypertension friends… would y’all be interested in creating a live where we can all get on and talk? A few of us did it last week and it was great. Life with IIH and getting an IIH diagnosis can be difficult. There’s many of us that can provide insights to each other and just having someone relate to you sometimes can help. Let me know if this is something you would be interested in! ##idiopathicintracranialhypertension##iih##pseudotumorcerebri

Replying to @Teresa my idiopathic intracranial hypertension friends… would y’all be interested in creating a live where we can all get on and talk? A few of us did it last week and it was great. Life with IIH and getting an IIH diagnosis can be difficult. There’s many of us that can provide insights to each other and just having someone relate to you sometimes can help. Let me know if this is something you would be interested in! ##idiopathicintracranialhypertension##iih##pseudotumorcerebri

Here is a quick & easy understand explanation of migraine and something I experience every day #chronicmigraine #intractablemigraine #withoutaura #newdailypersistentheadache #spontaneousIntracranialHypotension #csfleak #Idiopathicintracranialhypertension #highpressureheadaches #lowpressureheadaches #MigrainewithUnilateralMotorsymptoms #MUMS #zebra #medicalzebra #raredisease #chronicillness #chronicpain #jeffersonhealthphiladelphia #cedarssinai #california #dukemedicalcenter #northcarolina #spoonie #spooniesoftiktok #neurology #neurologytiktok #migraine #migrainetiktok #migrainerelief #migrainerelieftok #migrainecheck #strokelikesymptoms #zebra #medicalzebra #dontbackdown #ynatq #fyp #foryou

Ehlers-Danlos, endometriosis and idiopathic intracranial hypertension (IIH) sisters… and my POTS and dysautonomia ladies… and any of my fellow invisible illness and spoonie brothers and sisters. This whole mass follower trend… let’s use it as an opportunity to connect with eachother and build the biggest invisible illness support community ever! I am a spoonie for life and I would love to connect with even more of you that struggle with your health as well. Before we lose TikTok 😢. So follow me and comment your invisible illness below and I will follow you back. Follow everyone who likes your comment as well. Let’s connect! ##ehlersdanlos##endometriosis##ehlersdanlossyndrome##iih##idiopathicintracranialhypertension##pots##potssyndrome##dysautonomia##invisibleillness##spoonie##spooniesoftiktok##lymedisease##massfollow

Ehlers-Danlos, endometriosis and idiopathic intracranial hypertension (IIH) sisters… and my POTS and dysautonomia ladies… and any of my fellow invisible illness and spoonie brothers and sisters. This whole mass follower trend… let’s use it as an opportunity to connect with eachother and build the biggest invisible illness support community ever! I am a spoonie for life and I would love to connect with even more of you that struggle with your health as well. Before we lose TikTok 😢. So follow me and comment your invisible illness below and I will follow you back. Follow everyone who likes your comment as well. Let’s connect! ##ehlersdanlos##endometriosis##ehlersdanlossyndrome##iih##idiopathicintracranialhypertension##pots##potssyndrome##dysautonomia##invisibleillness##spoonie##spooniesoftiktok##lymedisease##massfollow

The thought of life without the amazing community of people I have met on this app makes me so sad. I truly got through losing my brother because of some of the most amazing people I met on this app who helped me advocate for education, so other people didn’t have to live through what I did. I have watched so many people grow, build, and connect on this app… while some of the other apps just buried content. I have met so many amazing, invisible illness warriors who also have idiopathic intracranial hypertension (IIH), Ehlers Danlos, endometriosis, and so much more. I truly hope y’all come join me on Y Tube. It will be a very sad day in this country if we lose our voices on this app. I am going to spend a lot of time following as many of my favorites as I can. Please connect with me on Y tube if we get shut down… I updated my 🔗. In the meantime, I will just hope this truly doesn’t happen. #tik#tiktokbani#idiopathicintracranialhypertensionl#ehlersdanlossyndromel#ehlersdanlosd#endometriosisv#invisibleillness

The thought of life without the amazing community of people I have met on this app makes me so sad. I truly got through losing my brother because of some of the most amazing people I met on this app who helped me advocate for education, so other people didn’t have to live through what I did. I have watched so many people grow, build, and connect on this app… while some of the other apps just buried content. I have met so many amazing, invisible illness warriors who also have idiopathic intracranial hypertension (IIH), Ehlers Danlos, endometriosis, and so much more. I truly hope y’all come join me on Y Tube. It will be a very sad day in this country if we lose our voices on this app. I am going to spend a lot of time following as many of my favorites as I can. Please connect with me on Y tube if we get shut down… I updated my 🔗. In the meantime, I will just hope this truly doesn’t happen. #tik #tiktokbani #idiopathicintracranialhypertensionl #ehlersdanlossyndromel #ehlersdanlosd #endometriosisv #invisibleillness

Did you know these are all symptoms of migraine? #chronicmigraine #intractablemigraine #withoutaura #newdailypersistentheadache #spontaneousIntracranialHypotension #csfleak #Idiopathicintracranialhypertension #highpressureheadaches #lowpressureheadaches #MigrainewithUnilateralMotorsymptoms #MUMS #zebra #medicalzebra #raredisease #chronicillness #chronicpain #jeffersonhealthphiladelphia #cedarssinai #california #dukemedicalcenter #northcarolina #spoonie #spooniesoftiktok #neurology #neurologytiktok #migraine #migrainetiktok #migrainerelief #migrainerelieftok #migrainecheck #strokelikesymptoms #zebra #medicalzebra #dontbackdown #ynatq #fyp #foryou

#mrsnobody🧠 #idiopathicintracranialhypertension #chronicillness

#mrsnobody🧠 #idiopathicintracranialhypertension #chronicillness

It is such a very sad day in America… I just wanted to say thank you to all of the utterly authentic and inspiring people I have met on this app. Thank you to everyone who helped me get through losing my little brother and who helped spread awareness in his honor. Thank you to every single idiopathic intracranial hypertension, Ehlers Danlos, and every other invisible illness warrior who connected with me on my journey and shared yours. I hope some of you will join me on YTube. And I hope all of you will continue to create such inspiring amazing real content. #tiktokban #tiktokpartner #ehlersdanlos #endometriosis #iih #idiopathicintracranialhypertension #invisibleillness #spooniesoftiktok

It is such a very sad day in America… I just wanted to say thank you to all of the utterly authentic and inspiring people I have met on this app. Thank you to everyone who helped me get through losing my little brother and who helped spread awareness in his honor. Thank you to every single idiopathic intracranial hypertension, Ehlers Danlos, and every other invisible illness warrior who connected with me on my journey and shared yours. I hope some of you will join me on YTube. And I hope all of you will continue to create such inspiring amazing real content. #tiktokban #tiktokpartner #ehlersdanlos #endometriosis #iih #idiopathicintracranialhypertension #invisibleillness #spooniesoftiktok

#mrsnobody🧠 #idiopathicintracranialhypertension

#mrsnobody🧠 #idiopathicintracranialhypertension

#mrsnobody🧠 #idiopathicintracranialhypertension #presyncope

#mrsnobody🧠 #idiopathicintracranialhypertension #presyncope

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