invisibledisability hashtag performance
The #invisibledisability hashtag promotes awareness and understanding of disabilities that aren't immediately visible, fostering empathy, sharing personal experiences, reducing stigma, and encouraging conversations about accessibility and inclusion in society.
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If you want to see part 1, check out this video! @Kit ✨♿️ And if you want to see part 2, check out this video! @Kit ✨♿️ MCAS stands for mast cell activation syndrome and can come with a WIDE variety of symptoms and presentations. Disclaimer, having these symptoms doesn’t automatically mean you have MCAS, there are other possible conditions that present similarly so it is worth getting checked out and speaking to an allergist or immunologist if you’re concerned 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Disclaimer, this is my personal experience, MCAS does vary from person to person and there are a variety of severities, all the way up to anaphylactic reactions. MCAS stands for mast cell activation syndrom, this is a condition where the mast cells responsible for protecting the body from pathogens are overactive and respond oftentimes without an obvious trigger, releasing histamine and other signals to activate your immune system. This can cause a wide array of symptoms, but the best way I can describe it as someone who has it, it feels like I can have an allergic reaction to anything at anytime, regardless of if I’m actually allergic and even if I’ve never had a reaction to that particular thing before. It can be a real whirlwind 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Replying to @Dazey Fairy I hope this helps explain a bit more about what an anterior pelvic tilt is and how it can impact you! With hEDS, our joints simply aren’t strong enough to hold us together, so a lot of us end up with a slumped posture or utilizing our muscles to overcompensate for our joints. This can cause a wide variety of issues, an anterior pelvic tilt being one of them! 🙌 #greenscreen #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #anteriorpelvictilt
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hEDS stands for hypermobile ehlers danlos syndrome which is one of 13 subtypes of a connective tissue disorder. PSA: having the symptoms in this video doesn’t automatically mean you have hEDS, this is just my experience. Although if you’re curious and wanting to learn more, I recommend the ehlers danlos society website 🙌 I had a ton of “quirky” traits that for the longest time I didn’t know was all connected to my hEDS 😅 after being diagnosed for almost 2 years, I’m still unraveling connections and figuring out this condition and how all it impacts me 😅 #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ Disclaimer, this is my own personal experience w/ MCAS, there is a wide variety of symptoms and each person experiences it differently. Having these symptoms doesn’t automatically mean you have MCAS, but these are possible symptoms of MCAS in my experience 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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You don’t need to struggle with walking in order to use a mobility aid. If you struggle to stand, wait in line, constantly need something to lean on or sit down, etc, then using a mobility aid might be helpful option to look into! #mobilityaid #mobilityaids #ambulatorywheelchairuser #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
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Inaccurate notes is one of my pet peeves when it comes to medical care and doctors. It leads to so many barriers and trials, as well as dismissiveness and gaslighting. It took me over a year to get diagnosed with seizures PURELY bc of the inaccurate notes taken on my episodes. This is a much bigger deal than people realize and I wish more doctors understood how this negligence can impact their patients. #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #medicaltiktok
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Cleaning a pretty clean site this time around. Could feel the small pocket starting but overall was one of the best ones yet. This was 5+ wks! #Subqremo #sickfightsback #invisibleillnessawareness #spoonielife #noteverydiseaseisvisable #chronicillnessawareness #heartfailure #pulmonaryhypertension #chronicillnesswarrior #pulmoaryarterialhypertension #rarediseaseawareness #phighter #MentalHealth #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #patientleader #patientadvocate #butyoudontlooksick #clincialtrial #pulmonaryhypertensionadvocate #notalldisabilitiesarevisible #chroniccommunity
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Replying to @Kaelin Wendling Langlois This is ultimately my personal opinion, what works well for me may not work well for everybody 🙌 Pros and Cons of canes, walkers, and wheelchairs! Cane edition ✨ Pros: ✨ affordable ✨ easy to access ✨ doesn’t take up much space ✨ easy to maneuver ✨ gives a place to lean up against ✨ doesn’t often restrict where you can go, not as reliant on accessibility Cons: ✨ no bilateral support ✨ very hands on (difficult to juggle multiple things while holding a cane) ✨ still requires standing and self support ✨ no seating option Keep an eye out for parts 2 and 3 where I’ll be going over walkers and wheelchairs 🙌 #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mobilityaid #canes #caneuser
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ And disclaimer, just bc you have these problems doesn’t automatically mean you have hEDS, this is simply my experience looking back on my life in retrospect now that I have a diagnosis and realizing just how many little things were related to my conditions 😅 however, if you want to learn more information about EDS, I would highly recommend the Ehlers Danlos Society website 🙌 it has a ton of useful information, resources, the diagnostic criteria, and a providers directory ✨ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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V happy about this pull, minus the ripping of the skin 😅 whoops. #Subqremo #sickfightsback #invisibleillnessawareness #spoonielife #noteverydiseaseisvisable #chronicillnessawareness #heartfailure #pulmonaryhypertension #chronicillnesswarrior #pulmoaryarterialhypertension #rarediseaseawareness #phighter #MentalHealth #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #patientleader #patientadvocate #butyoudontlooksick #clincialtrial #pulmonaryhypertensionadvocate #notalldisabilitiesarevisible #chroniccommunity
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Pain scales can be super tricky when you have a complex condition that causes wide spread pain, joint instability, and multiple comorbid conditions. Multiple areas of the body can be in different levels of pain all at the same time and it makes figuring out how to rank your pain difficult 😅 #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobile #connectivetissuedisorder #chronicpain
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And I’m usually the type to want a deeper massage so I thought this was going to be perfect 😅🤣 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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Replying to @minimosa251 I hope this makes sense, and sorry for using your comment for this 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ And quick disclaimer, this is my personal experience and things I went through bc of my POTS. Having these symptoms doesn’t necessarily mean you have POTS. But, if you’re curious and want to learn more, I highly recommend checking out the Dysautonomia International website, it has a ton of useful information, resources, and a providers directory 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #dysautonomiapots
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stellate ganglion blocks! highly recommend👍🏼 #chronicillnessawareness #chronicillnesslife #chronicillness #chronicfatigue #chronicpain #MCAS #invisibledisability #invisiblechronicillness #multiplechronicillnesses #POTS #hEDS #hypermobility #mastcellactivationsyndrome #mastcell #mastcellawareness #invisibleillness #posturalorthostatictachycardiasyndrome #potsawareness #hypermobileehlersdanlossyndrome #stellateganglionblock
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im traveling a lot this month and its always made me anxious, you never know how you’ll feel, what will happen, etc. here are some tips and tricks I’ve learned when traveling with chronic illness. I also have a google doc in my bio that outlines the more technical aspects like TSA cares and even talks about traveling with your own mobility aids or wheelchairs and how to keep them safe and from being damaged. Traveling would not be possible without all of my tools such as @MY OBI , @Somedays | Period Pain Relief , @fashionablecanes, sensory aids, and all of the accessible services available. VD: Tayler, a young white thin woman with medium length brown hair, in multiple clips showcasing tools for traveling which include, “extra medical bags, you are allowed extra medical carry ons and checked bags for no extra charge. TSA cares, you can request TSA agent assistance through security if you have medical supplies, medical devices, communication differences, or other concerns that could make going through security more difficult. Allow for extra time. Layer clothing. Preboarding. Myobi. Mobility aids, wheelchair services, you can request a wheelchair on your flight reservation and they’ll be waiting for you after you land. You can either be escorted or use the wheelchair on your own. Pain management and medication. Snacks. Sensory aids. and sometimes things just happen that you can’t avoid and don’t have control over, and that’s okay, you’ll get through it! Being prepared is all you can do.” #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #invisibledisability #endo #endometriosis #pots #mcas #ostomy
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Replying to @Manna I hope this helps! Disclaimer that I am not a medical professional, this advice comes from my physical therapist teaching me proper form with a cane, and if you’re ever curious or need help figuring out what would work best for you, a physical therapist can do wonders for teaching you proper form and finding options that will support you properly 🙌 #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mobilityaid #cane #caneuser
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Credit to @nicolepedra and @Lexi for this idea 🙌 as someone who’s family has been through cancer several times and who has lost people very close to me bc of it, I want to offer another perspective on why saying these things can be so hurtful. You don’t know what people have been through or the things they have to worry about. My family’s history of cancer literally haunts me. One of my biggest fears is that I’ll develop it too, but bc of my chronic illnesses, not realizing there’s a problem until it’s too late. Just like my mom. So please, before saying things like this, think about the people you’re harming, this kind of stuff hits close to home for many of us. #chronicillness #chronicillnessawareness #chronicallyill #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #cancersucks #parentloss #grief #griefjourney #griefandloss #grieftok
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Everybody needs a little bit of encouragement to get through the day, and sometimes a small reminder can make a big difference. Let me show you a quick and easy way to set up your phone to send you daily encouragement and positivity—because we all deserve a little boost! ##tutorials##iphonetricks##subqremo##sickfightsback##invisibleillnessawareness##spoonielife##noteverydiseaseisvisable##chronicillnessawareness##heartfailure##pulmonaryhypertension##chronicillnesswarrior##pulmoaryarterialhypertension##rarediseaseawareness##phighter##MentalHealth##chronicillness##invisibleillness##livingwithph##invisibledisability##invisibledisease##raredisease##phwarrior##livingwithchronicillness##patientleader##patientadvocate##butyoudontlooksick##clincialtrial##pulmonaryhypertensionadvocate##notalldisabilitiesarevisible##chroniccommunity
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