medicallycomplexparenting hashtag performance
Supportive, resilient parents navigating challenging medical needs. Advocacy, caregiving, and understanding. Building community, sharing struggles, and celebrating victories. Raising medically complex children with love and strength.
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IYKYK. The feeding pump was but a minor delay๐ If youโre a medical parent, tell me how you kee
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We love the dentist bc these are the quickest appointments we get around here๐
๐ฆท #rarediseasepa
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The way he cares for them. Without hesitation. Without being asked. Becoming a parent to two medical
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Like is this real life? How did I get here?!๐
โผ๏ธStay tuned for my full speech to lawmakers on
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Unpaid, untrained, but definitely unmatched. Shout out to every medical parent who became a full-blo
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๐ฉบ๐โ๏ธ๐คช #rarediseaseparenting #medicallycomplexparenting #medicalmama #raremama #theseare
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Time to slay the day, queens ๐๐ฉบโ๏ธ #GlowUp #nodaysoff #tubiemom #medicalmama #specialneedsp
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After the diagnosis, we were thrown into survival mode. We left careers. We chased clinical trials.
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BRB, gotta run to DC real quick to help fight for my childrenโs right to healthcareโ๏ธ๐โ๏ฟฝ
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If our kids could speak with their words, I believe this is what they would say to @don.arnold86 , t
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I donโt dream of yachts or private islands. I dream of research and breakthroughs. Of treatments.
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๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐๐ป๐
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We love the dentist bc these are the quickest appointments we get around here๐
๐ฆท #rarediseasepa
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We didnโt choose this path. We canโt control the diagnosis, the prognosis, or the grief. But we
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