rarediseaseparenting hashtag performance
Empathy, resilience, advocacy, community. Supporting kids. Navigating illness, treatments, and diagnoses. Finding strength. Sharing experiences. Fighting for awareness. Celebrating victories, finding joy despite challenges. Building support networks.
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IYKYK. The feeding pump was but a minor delay😏 If you’re a medical parent, tell me how you kee
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We love the dentist bc these are the quickest appointments we get around here😅🦷 #rarediseasepa
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If you’re new here- hi, I’m Jillian. Mom and caregiver to the two most incredible kids who are
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The way he cares for them. Without hesitation. Without being asked. Becoming a parent to two medical
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Like is this real life? How did I get here?!😅 ‼️Stay tuned for my full speech to lawmakers on
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Unpaid, untrained, but definitely unmatched. Shout out to every medical parent who became a full-blo
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After the diagnosis, we were thrown into survival mode. We left careers. We chased clinical trials.
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BRB, gotta run to DC real quick to help fight for my children’s right to healthcare✌️💁�
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If our kids could speak with their words, I believe this is what they would say to @don.arnold86 , t
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We love the dentist bc these are the quickest appointments we get around here😅🦷 #rarediseasepa
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We didn’t choose this path. We can’t control the diagnosis, the prognosis, or the grief. But we
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