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rarediseaselife hashtag performance
#RareDiseaseLife captures the daily realities: pain, resilience, advocacy, community, hope. Navigating diagnoses, treatments, and awareness, sharing stories, and finding strength in shared experiences.
52.0k
When you’re first told that your child has a rare disease, time stands still. Those first few mome
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#raredisease
#rarediseaseawareness
#rarediseaselife
#acrocapitofemoraldysplasia
#acrocapitofemoraldy
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Where are my incredible moms with a desire for new mom friends who “get it?!?!?” 👋 Say “hi
423.0
Share with a mom who needs to hear this ❤️ I wrote a poem about a mother’s diagnosis journey.
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