raregeneticdisorder hashtag performance
#RareGeneticDisorder: Awareness, support, research, and personal stories. Sharing struggles, triumphs, and daily life with uncommon conditions. Finding community and hope through shared experiences and information.
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** READ CAPTION** My girl hit her head and bc of her rare genetic disorder we have to treat things
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My daughter takes a life saving medication called norditropin. it's indicated for use in children wi
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Tomorrow marks a year since he’s got his forever smile. Gosh how I never thought we’d be this fa
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My babies have such a amazing village, So thankful for all the family we have gained off this app. W
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come along with us on our new journey. this is different for the whole household but I know in the l
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Our voice is all they have, i hear so many stories of kids not getting the proper care on here and i
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Rare Gene and Genetic Disease Awareness Day and Reminder that you don’t know what people are going
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