superiormesentericarterysyndrome hashtag performance

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In honor of SMAS awareness day here is a repost of my most popular SMAS awareness video💟 VD: Tayler, a young white thin woman with medium length brown hair, signing in ASL to the camera. #superiormesentericarterysyndrome #smas #vascularcompression #raredisease

In honor of SMAS awareness day here is a repost of my most popular SMAS awareness video💟 VD: Tayler, a young white thin woman with medium length brown hair, signing in ASL to the camera. #superiormesentericarterysyndrome #smas #vascularcompression #raredisease

ib @georgia🫶🏼 i honestly believe without tik tok, i would have never got answers to my chronic debilitating stomach pain. i would probably still be suffering with no answers being told i am crazy. this app means everything to me and so many others. #superiormesentericarterysyndrome #smas #smasyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gastroparesiswarrior #paralyzedstomach #clevelandclinic #chronicillness #chronicpain #chronicstomachpain #fyp #foryou #fypage #foryoupage

i feel i am constantly watching the world from the sidelines. from watching what everyone orders at a restaurant. from watching how people can have breakfast, lunch, and dinner. from watching people eat and smile at the dinner table. from watching people workout. from watching people stand up and not pass out. from watching people make plans. from watching people my age party on the weekends. from watching people my age live their lives out of the hospital and dr appts. i could go on. i truly watch the world from the sidelines. it’s not fair, but i know it won’t be forever. there is hope. i just have to get there. recently i have been taking it day by day since the G-poem. Post G-poem has been super rough for me. praying for better days ahead. #superiormesentericarterysyndrome #smas #smasyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gastroparesiswarrior #paralyzedstomach #chronicillness #clevelandclinic #chronicstomachpain #spoonie #stomachpain #fyp #foryou #foryou #foryoupage #fypシ

i feel i am constantly watching the world from the sidelines. from watching what everyone orders at a restaurant. from watching how people can have breakfast, lunch, and dinner. from watching people eat and smile at the dinner table. from watching people workout. from watching people stand up and not pass out. from watching people make plans. from watching people my age party on the weekends. from watching people my age live their lives out of the hospital and dr appts. i could go on. i truly watch the world from the sidelines. it’s not fair, but i know it won’t be forever. there is hope. i just have to get there. recently i have been taking it day by day since the G-poem. Post G-poem has been super rough for me. praying for better days ahead. #superiormesentericarterysyndrome #smas #smasyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gastroparesiswarrior #paralyzedstomach #chronicillness #clevelandclinic #chronicstomachpain #spoonie #stomachpain #fyp #foryou #foryou #foryoupage #fypシ

Thank you so so much! You pull the bandaids and add the stitches! Thank you for the scars instead of the endless medical devices! It’s time for life 3.0 to come to light!! Kicking booty yalll! #hospital #thankyoudoctor #doctor #life360 #medicaljourney #chronicillness #chronicillnessawareness #elhersdanlossyndrome #postrualorthostatictachycardiasyndrome #mcas #diamondblackfananemia #epilepsy #gastroparesis #superiormesentericarterysyndrome #tracheotomy #ivnutrition #feedingtube #hickman

giving myself reasons are they only things in life that keep me going. without my reasons, i couldn’t do it. 🤍 #superiormesentericarterysyndrome #smasyndrome #smas #vascularcompressionsyndromes #gastroparesiswarrior #gastroparesis #vascularcompression #mals #smasyndromeawareness #clevelandclinic #digestivehealth #paralyzedstomach #paralyzedstomach #giveyourselfareason #fyp #foryou #foryoupage #fypシ

this song also is quite fitting as smas loves trying to 💀me and so many other people. SMAS HATE CLUB!! also apologies for being so inactive, things are rough rn and im just trying to focus on anything other than my health. unfortunately, my SMAS is quite angry rn just in time for SMAS awareness day😭cant wait for the day i can post about SMAS and all compressions fully for awareness and not actively having them some amazing people fighting this condition alongside me: @kenz🐞 @pey @alise @hailey @brianna @basically brooke @vicki:) @kiera!! @elle ☮︎︎ @trin❤️‍🔥 and so so many others that my brain is forgetting. never too rare to care💜 ##SMAS##superiormesentericarterysyndrome##smasawareness##smasawarenessday##wilkiesyndrome##SMAsyndrome##duodenumcompression##vascularcompression##avcs##vcs##vascularcompressionsyndromes##feedingtubeawareness##gtube##jtube##tpn##totalparenteralnutrition##ivnutrition##centralline #nottooraretocare

this song also is quite fitting as smas loves trying to 💀me and so many other people. SMAS HATE CLUB!! also apologies for being so inactive, things are rough rn and im just trying to focus on anything other than my health. unfortunately, my SMAS is quite angry rn just in time for SMAS awareness day😭cant wait for the day i can post about SMAS and all compressions fully for awareness and not actively having them some amazing people fighting this condition alongside me: @kenz🐞 @pey @alise @hailey @brianna @basically brooke @vicki:) @kiera!! @elle ☮︎︎ @trin❤️‍🔥 and so so many others that my brain is forgetting. never too rare to care💜 ##SMAS##superiormesentericarterysyndrome##smasawareness##smasawarenessday##wilkiesyndrome##SMAsyndrome##duodenumcompression##vascularcompression##avcs##vcs##vascularcompressionsyndromes##feedingtubeawareness##gtube##jtube##tpn##totalparenteralnutrition##ivnutrition##centralline #nottooraretocare

superior mesenteric artery syndrome awareness day 💜🦋 just a little glimpse of my battle/ journey with smas! i had undiagnosed smas for 5 years after constant dismissal from doctors and not being believed. and today i celebrate my 2nd year being diagnosed with smas. •a day dedicated to smas means so much coming from a girl who never believed she would get answers to her pain. a girl who was told she had to live with IBS. a girl who was told she was crazy and all her tests were “normal” •smas day makes me and so many others feel seen, heard, valued, respected, and have hope. this brings awareness to so many. •i’m here for you, i see you. i know your pain. never give up. always advocate. there’s light at the end. •my journey with smas seems never ending with a 2nd surgery in may. but i know there’s hope. 💜🦋 H.O.P.E. #smas #smasawarenessday #smasawareness #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gp #chronicillness #wearpurple #hope #spoonie #fyp #foryou #stomachpain #smasyndrome #gastroparesiswarrior #foryoupage

superior mesenteric artery syndrome awareness day 💜🦋 just a little glimpse of my battle/ journey with smas! i had undiagnosed smas for 5 years after constant dismissal from doctors and not being believed. and today i celebrate my 2nd year being diagnosed with smas. •a day dedicated to smas means so much coming from a girl who never believed she would get answers to her pain. a girl who was told she had to live with IBS. a girl who was told she was crazy and all her tests were “normal” •smas day makes me and so many others feel seen, heard, valued, respected, and have hope. this brings awareness to so many. •i’m here for you, i see you. i know your pain. never give up. always advocate. there’s light at the end. •my journey with smas seems never ending with a 2nd surgery in may. but i know there’s hope. 💜🦋 H.O.P.E. #smas #smasawarenessday #smasawareness #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gp #chronicillness #wearpurple #hope #spoonie #fyp #foryou #stomachpain #smasyndrome #gastroparesiswarrior #foryoupage

January 28th is Superior Mesenteric Artery Syndrome (SMAS) awareness day so join us for some fun but educational myth busters! SMAS is a rare digestive condition that occurs when the first part of the small intestine is compressed between the aorta and the superior mesenteric artery. This condition has a higher prevalence in people with EDS or CTDs, yet providers are still misinformed when diagnosing and treating this condition. Have you been told one of these myths by a provider before? @Charlie Stevens ID: 1. squashing myths about superior mesenteric artery syndrome. 2. Purple background with text, “myth: you have to throw up to be diagnosed with SMAS. FACT: vomiting is a common symptom of SMAS, but it is not required for diagnosis. SMAS presents in many ways and while someone might experience excessive vomiting, another person may rarely vomit.” 3. Purple background with text, “MYTH: you can only have smas if you’re underweight. FACT: while any body type can develop SMAS, it is often associated with a significant weight loss. SMAS does not only occur in “thin” people.” 4. Purple background with text, “MYTH: all cases of smas need surgery OR be resolved with weight gain. FACT: All cases will require different and varying treatment. Some SMA cases can be resolved with weight gain by building up the mesenteric fat tissue. However, other cases will need supplemental nutrition or surgical treatment. 5. Purple background with text, “MYTH: SMAS is an unseen condition with little history of it in medial literature. FACT: It was first reported in 1842 by Carl von Rokitansky. In 1927 David Wilkie described SMAS extensively in a case study which lead to the nickname, “Wilkie’s Syndrome”. However, while documented, it still remains widely misunderstood even by present day providers and requires further research.” 6. Purple background with text, “MYTH: SMAS is seen occurring equal between men and women. FACT: SMAS occurs more often in women than men with a documented ratio of 3:2.” 7. Purple background with text, “MYTH: Once SMAS is treated (conservatively or surgically) it can’t relapse. FACT: Conservative treatments like weight gain have a 71% - 85% success rate with a reoccurrence rate of 15%. Surgical treatments such as a DDJ (duodenojejunostomy) have a success rate of 90% and a 10% failure rate vs. The Strong procedure has a success rate of 75% and a 25% failure rate.“ 8. Purple background with text, “MYTH: If you’re diagnosed with SMAS, you can’t have a “normal” life. FACT: Managing SMAS and the symptoms that come along with it can be very difficult. Some people with SMAS are able work, eat in small portions, exercise, etc. Just because your life looks a little different than others, doesn’t mean you can’t participate in activities that bring you joy.“ 9. purple background titled REFERENCES: https://pmc.ncbi.nlm.nih.gov/articles/PMC10294176/#:~:text=This%20compression%20can%20cause%20obstructive%20symptoms%20and,people%20of%20any%20age%20or%20body%20type. https://rarediseases.info.nih.gov/diseases/7712/superior-mesenteric-artery-syndrome https://www.ncbi.nlm.nih.gov/books/NBK482209/#:~:text=While%20an%20accurate%20prevalence%20of,Go%20to: https://www.sciencedirect.com/science/article/pii/S2213576616302688#:~:text=Management%20of%20the%20overall%20SMA,fusion%20with%20some%20series%20having https://pubmed.ncbi.nlm.nih.gov/8857992/ #smas #superiormesentericarterysyndrome #vascularcompression #raredisease

January 28th is Superior Mesenteric Artery Syndrome (SMAS) awareness day so join us for some fun but educational myth busters! SMAS is a rare digestive condition that occurs when the first part of the small intestine is compressed between the aorta and the superior mesenteric artery. This condition has a higher prevalence in people with EDS or CTDs, yet providers are still misinformed when diagnosing and treating this condition. Have you been told one of these myths by a provider before? @Charlie Stevens ID: 1. squashing myths about superior mesenteric artery syndrome. 2. Purple background with text, “myth: you have to throw up to be diagnosed with SMAS. FACT: vomiting is a common symptom of SMAS, but it is not required for diagnosis. SMAS presents in many ways and while someone might experience excessive vomiting, another person may rarely vomit.” 3. Purple background with text, “MYTH: you can only have smas if you’re underweight. FACT: while any body type can develop SMAS, it is often associated with a significant weight loss. SMAS does not only occur in “thin” people.” 4. Purple background with text, “MYTH: all cases of smas need surgery OR be resolved with weight gain. FACT: All cases will require different and varying treatment. Some SMA cases can be resolved with weight gain by building up the mesenteric fat tissue. However, other cases will need supplemental nutrition or surgical treatment. 5. Purple background with text, “MYTH: SMAS is an unseen condition with little history of it in medial literature. FACT: It was first reported in 1842 by Carl von Rokitansky. In 1927 David Wilkie described SMAS extensively in a case study which lead to the nickname, “Wilkie’s Syndrome”. However, while documented, it still remains widely misunderstood even by present day providers and requires further research.” 6. Purple background with text, “MYTH: SMAS is seen occurring equal between men and women. FACT: SMAS occurs more often in women than men with a documented ratio of 3:2.” 7. Purple background with text, “MYTH: Once SMAS is treated (conservatively or surgically) it can’t relapse. FACT: Conservative treatments like weight gain have a 71% - 85% success rate with a reoccurrence rate of 15%. Surgical treatments such as a DDJ (duodenojejunostomy) have a success rate of 90% and a 10% failure rate vs. The Strong procedure has a success rate of 75% and a 25% failure rate.“ 8. Purple background with text, “MYTH: If you’re diagnosed with SMAS, you can’t have a “normal” life. FACT: Managing SMAS and the symptoms that come along with it can be very difficult. Some people with SMAS are able work, eat in small portions, exercise, etc. Just because your life looks a little different than others, doesn’t mean you can’t participate in activities that bring you joy.“ 9. purple background titled REFERENCES: https://pmc.ncbi.nlm.nih.gov/articles/PMC10294176/#:~:text=This%20compression%20can%20cause%20obstructive%20symptoms%20and,people%20of%20any%20age%20or%20body%20type. https://rarediseases.info.nih.gov/diseases/7712/superior-mesenteric-artery-syndrome https://www.ncbi.nlm.nih.gov/books/NBK482209/#:~:text=While%20an%20accurate%20prevalence%20of,Go%20to: https://www.sciencedirect.com/science/article/pii/S2213576616302688#:~:text=Management%20of%20the%20overall%20SMA,fusion%20with%20some%20series%20having https://pubmed.ncbi.nlm.nih.gov/8857992/ #smas #superiormesentericarterysyndrome #vascularcompression #raredisease

#smasyndromeawareness #smas #smasyndromeawareness #smasyndromelife #personallyvictimizedbymystomach #superiormesentericarterysyndrome #fightlikerowdie

#smasyndromeawareness #smas #smasyndromeawareness #smasyndromelife #personallyvictimizedbymystomach #superiormesentericarterysyndrome #fightlikerowdie

Dogs are the best comfort. 💜💜#fightlikerowdie #superiormesentericarterysyndrome #smas #smasyndromelife #mals #malssyndrome

Dogs are the best comfort. 💜💜#fightlikerowdie #superiormesentericarterysyndrome #smas #smasyndromelife #mals #malssyndrome

Good Morning! Today is day 8 at cooks children’s hospital! #fightlikerowdie #superiormesentericarterysyndrome #smas #mals

Good Morning! Today is day 8 at cooks children’s hospital! #fightlikerowdie #superiormesentericarterysyndrome #smas #mals

January 28 is SMAS Awareness Day 💜 I appreciate y’all sharing & supporting this video to help spread awareness 🫶🏻 Check my story for more educational videos linked on SMAS & for a special edition of my drawing series coming later tonight 👀💜 #fyp #chronicillness #invisibleillness #disabled #disability #raredisease #rarediseaseawareness #awareness #smas #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #medicallycomplex #chronicallyill #chronicillnessawareness #misinformation #misconceptions #medical #misinformationkills #healthcare #malnutrition #giissues #tpn #stomachproblems #womenshealth #surgery

To my fellow tubies: what’s the best way you’ve found to clean your tube/button?😭🫶🏻 #feedingtube #medicaldevice #chronicillness #smas #superiormesentericarterysyndrome #fyp #utah #medicalcare

To my fellow tubies: what’s the best way you’ve found to clean your tube/button?😭🫶🏻 #feedingtube #medicaldevice #chronicillness #smas #superiormesentericarterysyndrome #fyp #utah #medicalcare

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