systemicmastocytosis hashtag performance
#SystemicMastocytosis highlights experiences of living with this rare condition, sharing symptoms, treatment journeys, support networks, research updates, advocacy efforts, community connections, awareness, education, and personal stories about overcoming challenges.
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With systemic mastocytosis, before and after chemo. Fought hard for my diagnosis and to get here, blessed to be able to start this chemo 💜 @Bunny B , you may appreciate this! 💜#systemicmastocytosis #mcas #hat #ayvakit #chemo #chroniccancer #d816v #oncology #xolair #anaphylaxis #hematology #facialswelling #beforeandafter #raredisease #bloodcancer #neoplastic #mastcell
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#ad I rarely meet people with mast cell conditions, but as part of a paid partnership with Blueprint Medicines I was able to attend the Colors of SM event where we got to see these often invisible experiences brought to life through art. If you live with SM , you can visit ColorsOfSM.com to learn more about the stories behind Colors of SM and apply for Year 2 of the program. #mastcell #mcas #systemicmastocytosis #mastcelldisorder
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One of the ✨ODDEST✨ things I’ve been told by someone. So many of us would LOVE to not have it. Takes certain type of person fr #chroniccancer #systemicmastocytosis #d816v #ayvakit #chronicillness #disabled #eds #pots #anaphylaxis #mcas #mastcelldisease #oncology #hematology #mitochondrialdisease #periodicparalysis #epilepsy #seizure #POLG
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