systemicmastocytosis hashtag performance
#systemicmastocytosis highlights a rare condition involving mast cell overproduction, causing symptoms like skin reactions, allergies, and gastrointestinal issues. It fosters awareness, community support, and shared experiences among affected individuals.
4.2k
With systemic mastocytosis, before and after chemo. Fought hard for my diagnosis and to get here, blessed to be able to start this chemo 💜 @Bunny B , you may appreciate this! 💜#systemicmastocytosis #mcas #hat #ayvakit #chemo #chroniccancer #d816v #oncology #xolair #anaphylaxis #hematology #facialswelling #beforeandafter #raredisease #bloodcancer #neoplastic #mastcell
1.1k
One of the ✨ODDEST✨ things I’ve been told by someone. So many of us would LOVE to not have it. Takes certain type of person fr #chroniccancer #systemicmastocytosis #d816v #ayvakit #chronicillness #disabled #eds #pots #anaphylaxis #mcas #mastcelldisease #oncology #hematology #mitochondrialdisease #periodicparalysis #epilepsy #seizure #POLG
955.0
Diagnosis or not, we have what we have and this isn’t a competition. We’re all in this together! #systemicmastocytosis #complextrauma #cptsd #pots #ivig #cancer #chroniccancer #mcas #pentadsupersyndrome #autoimmune #eds #rarediseaseawareness #periodicparalysis #hypoPP #epilepsy #disabled #chronicillness
660.0
I miss you so much, Pick. Life is so unfair and took you way too soon. I wish i couldve saved you. I would’ve done anything. #immunemediatedmeningitis #vetmed #vettech #germanshepherd #germansgepherdsoftiktok #traumaticgrief #medicalalertdog #anaphylaxisalertdog #systemicmastocytosis #complextrauma #pots #eds #mcas #servicedog #workinglinegermansheperds #workinglines
640.0
I didnt know this when i made the video, i DID in fact have cancer 😃 #onthisday #cancer #systemicmastocytosis #oncology #eds #pots #mcas #pentadsupersyndrome #disability #medicaltrauma #hyperpots #ayvakit #hematology #ism #cptsd #ptsd #chronicillness #dysautonomia #aag #autoimmunedisease
584.0
#stitch with @Lindsey | Gut Health Coach this doesnt even include the legal issues you could face as a result. Please stop. #systemicmastocytosis #chroniccancer #chronicillness #disability #alternativemedicine #guthealth
520.0
Replying to @paraman I don’t have l0ng haul3rs. I have had symptoms almost my whole life. It’s not just teenage girls, and I will fight for those affected from post v!ral illness - no matter the virus. #pots #eds #mcas #pentadsupersyndrome #systemicmastocytosis #longhaul #autoimmune #chronicillness #medicalgaslighting #chroniccancer #ayvakit #disability #mitochondrialdisease #epilepsy #ivig #neuroautoimmune
508.0
Replying to @paraman you probably shouldn’t make assumptions bc the answer doesnt always make you look good #medicalneglect #autoimmune #cptsd #pots #eds #medicalgaslighting #systemicmastocytosis
289.0
They were wanting to plce a feeding tube and I’m in ED recovery so this is hell, but ok! #gastroparesis #cancer #systemicmastocytosis #edrecovery #gastrointestinal #oncology #eds #mals #celiacarterycompressionsyndrome #vascularcompression #postprandialpain #pots #mcas #pentadsupersyndrome
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