Holistic Hidradenitis Help

Traveling with hidradenitis is special - those pilonidal cyst can be problematic 😭😭😭

I get asked all the time: How do you eat when you travel? The truth? My diet’s a lot more flexible than it used to be. I can navigate most restaurant menus pretty easily these days. But eating every meal out? That doesn’t work for me. There’s just something different about restaurant food — maybe it’s the oils, the quality, or how it’s prepped — but I don’t feel my best when I eat out nonstop. So when I travel and have access to a kitchen? I always do a little meal prep. I shop, I cook a few basics, and I make sure I’ve got meals I can eat at home — because it helps me manage inflammation, keep my digestion on track, and just feel good while I’m away. And honestly? After a long day at a conference, talking to people nonstop… There is nothing better than coming back to your Airbnb, putting on a onesie, and curling up on the couch with a chicken and rice bowl and a movie. #antiinflammatorylife #mealprepwhiletraveling #glutenfree #chronicillnessnutrition #foodismedicine

This stuff is magical and dermatologist approved for Hidradenitis Suppurativa, eczema, foliculitis etc - when my skin is feeling inflamed I use the shampoo which is extra potent as body wash! #ingrownhair #hidradenitissuppurativa #hswarrior #dermatologist #fyp #tiktokshop

Replying to @Kiffany 🌹 recipe for a antiinflammatory soup- I also have my full presentation on wound healing foods on my site- Ingredients: 2 tablespoons avocado oil 1 small onion, diced 2 sticks celery, diced 2 cloves garlic, minced 1 pound 90% lean ground beef 1 teaspoon fine salt 1 teaspoon dried parsley 1 teaspoon garlic powder ½ teaspoon dried oregano 2 tablespoons paleo mayo 2 tablespoons Dijon mustard 1-2 tablespoons Worcestershire sauce 3 cups bone broth 2 tablespoons dill pickle brine (optional) To garnish and optional:  Sliced pickles Crispy bacon Shredded lettuce Instructions 1. Heat a large pot over medium heat. Add in the cooking oil. 2. When it comes to temperature add in the onion, celery and garlic. 3. Sauté until softened and aromatic, about 8 minutes. 4. Crumble in the ground beef and the seasoning, breaking up and stirring with a whisk. 5. Cook, stirring often until browned, about 8 minutes. 6. Mix in the mayo and the mustard until creamy. Mix in Worcestershire sauce if using. 7. Then add in the broth and brine. Stir well then cover. Simmer for 20 minutes. 8. Open the lid and bring to a boil, stirring often for 5 minutes. Take it off the heat. 9. Serve hot! Add toppings and garnishes if desired.

and I’m about to hear her speak on HS! This woman is a powerhouse and truly a champion for the hidradenitis suppurativa community 🫶🏽 @Dr.Weisman / Dermatologist #hidradenitissuppurativa #hswarrior #dermatologist

Go to @HSConnect.org and see a dermatologist listed in their dermatology finder 🫶🏻🙌 #hidradenitissuppurativa #hswarrior

#hidradenitissuppurativa #hsadministrator #patientadvocate #hswarrior

There was a time I didn’t think I’d make it to 40. Chronic illness had me convinced that life would never move forward—that I’d always be stuck in a cycle of pain, inflammation, and exhaustion. I thought HS would take everything from me. But here I am. Forty. And it feels like such a privilege. Aside from a pesky frozen shoulder (hi, aging!), I feel strong. I feel grateful. And I feel more myself than ever before. Sure, I was a little nervous—wondering if hormonal shifts would send my skin spiraling or if some new mystery illness would creep in. You hear the stories. But instead, what’s shown up is… a very normal rite of passage for a woman in her 40s. And somehow, I welcome it. We live in a world where 20-year-olds get preventative Botox and 13-year-olds are buying anti-aging serums at Sephora. But I didn’t grow up like that. I grew up rubbing baby oil on my skin and baking in the sun, not worrying about fine lines or collagen loss. Now, I see every line, every ache, and every moment of mobility, energy, and ease as a gift. Aging isn’t something I want to fight—it's something I get to do. And that, in itself, is beautiful. 💫

I will be in this @Halara_official all summer. It’s flattering, it keeps me cool and it’s so soft to the touch! The perfect summer dress does exist!!! #halara #summer #activewear

Replying to @Yaron why blood sugar regulation is key for Hidradenitis Suppurativa management #hidradenitissuppurativa #hswarrior

Shape wear active wear that doesn’t make me swear profusely?! I’m in! Obsessed with these leggings 🙌 @Halara_official #halara #halaraleggings #halaratiktokshop

🩺 Just a friendly reminder that sometimes HS advocacy means politely (or not-so-politely) educating your doctor. 🙃 Yes, doctors go through med school. But you have a PhD in living with Hidradenitis Suppurativa — and if you’re anything like me, you’re also tuned into newsletters, summits, and every new FDA approval that drops. So if your derm is still talking about sweat glands, hygiene, or weight as the cause of HS... it’s okay to speak up. That’s not sass — that’s science. 📚💁🏽‍♀️ 🗣️ Sharing what you’ve learned isn’t disrespectful — it’s collaboration. And honestly? It might help the next patient, too. Tell me about a time you had to do a little education in the exam room!! #HidradenitisSuppurativa #HSAdvocate #PatientPower #EducateToLiberate #ChronicIllnessWarrior #MedicalGaslightingNoMore #FDAApprovedAndFierce

Replying to @Mo here is how I make my sipping bone broth! It’s packed with gelatin, collagen, minerals and protein 🫡 #bonebroth #guthealthtiktok

Are you looking for me meal prep resources? When you have chronic illness, chronic inflammation, or just like to optimize your health, what you eat is going to be a big part of that! A high protein, anti inflammatory way of eating helped me out my hidradenitis suppurativa in remission. It’s also helped me drop 60lbs (and counting, on a glp) in the last 2 years. Consistency is paramount, which means actually enjoying the food your eating. I have 2 best selling cookbooks, a 6 week meal plan and a glp companion guide with a meal plan and shopping list in it. Lmk which you sparks your interest and I’ll send you the info 🫶🏽 @Sprouts Farmers Market @Goodles @WildeChips @Pederson's Farms #Mealprep #groceryhaul #chronicillness #highprotein #antiinflammatory