Kyra

trachbaby hashtag performance

#Trashbaby celebrates unapologetic individuality, creativity, and humor. It highlights relatable struggles, chaotic moments, and self-acceptance. Users share their quirky experiences, fostering a community that embraces flaws and life's messiness.
Ramiโ€™s on TV and a billboard!!!  #cincinnatichildrenshospital #nicubaby #trachbaby #medical #gtube
I remember the days where I was drowning, thinking Iโ€™m never going to make it out of this. And here we are! Doing it! Stay strong and lean on your circle of support, if you donโ€™t have one.. you have me! ๐Ÿซถ๐Ÿผ #risewithraedyn #medicalmama #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #craniofacialdifference #specialneedsmom
Why did I advocate so hard for my daughter to get a trach? #trachbaby #trachkid #nicu #nicumom #nicugraduate #gtubebaby
He never quits. He doesnโ€™t understand โ€œcanโ€™tโ€. He finds a new way and pushes on. We could all learn a little something from his resilience ๐Ÿ’œ #risewithraedyn #medicallycomplex #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom
Some days I get so sad that the world isnโ€™t kinder to my son, but then i remember just how much he is loved by his family and how we all go above and beyond to make these special memories with him ๐Ÿ’œ #risewithraedyn #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #medicallycomplex #bekind #speechdelay #craniofacialdifference #acceptance #inclusion #inclusiveplay
Little dance party with my guy ๐Ÿชฉ๐Ÿ•บ๐Ÿผ#risewithraedyn #boyswillbeboys #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom #bekind #specialneedsmom
Raedyn has to sleep with at least a handful of cars next to him every night ๐Ÿ’œ #risewithraedyn #boyswillbeboys #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #medicalmama #specialneedsmom #bekind
Sunday morning w/ Chanceโ€ฆ he hates trach care ๐Ÿ˜ฉ #chdawarness #chd #twinmom #twinmomlife #specialneedsmom #heartmom #picu #viral #fypใ‚ท #toddlermom #toddlertok #MomsofTikTok #fyp #ditlofamom #boymom #twintok #hlhs #trachbaby
So many people have the wrong idea about a Trach. They think it takes away the ability to speak, which is false. The trach makes it trickier, but it is possible with work. Raedyn is getting the hang of it, and is getting much louder. Listen to the babble I missed for 3.5 years ๐Ÿ’œ #risewithraedyn #toddlersoftiktok #pfeiffersyndrome #craniosynostosis #trachbaby #trach #medicallycomplex #medicalmama #speechdelay #inclusion #craniofacialdifference #acceptance
Day 1! Travel day!  โœˆ๏ธ  our first family vacation! So glad my mom, and nana could come with us! They helped sooo much! #risewithraedyn #christmas2024 #christmasinhawaii #honoluluhawaii #traveltiktok #travel #adayinmylife #medicallycomplex #familyvacation #travelingwithkids #pfeiffersyndrome #trachbaby #craniofacialdifference #bekind #christmasvacation
Day 2 in Hawaii ๐ŸŒด Visit through the Polynesian Center! Definitely a memorable experience! ๐Ÿ’œ Raedyn embraced his inner island boy and ran around all day with no shoes! Played with rocks and tried coconut milk! #risewithraedyn #christmas2024 #christmasinhawaii #honoluluhawaii #polynesiancenter #traveltiktok #medicallycomplex #travelingwithkids #pfeiffersyndrome #trachbaby #craniofacialdifference #bekind #trachbaby #specialneedsmom
Day 3 In Hawaii ๐Ÿ๏ธ Dad and big brother got up early and went deep sea fishing! Then we all went snorkeling together while Nana & Grandma watched Raedyn on the boat ๐Ÿ’œ We seen turtles, squid and lots of fish! #risewithraedyn #christmasinhawaii #honoluluhawaii #traveltiktok #travelingwithkids #medicallycomplex #pfeiffersyndrome #trachbaby #craniofacialdifference #adayinmylife #bekind #pfeiffersyndrome #specialneedsmom #familyvacation #christmasvacation #honoluluhawaii #deepseafishing #snorkeling #hawaiiturtle
When itโ€™s below Zero outside.. we stay inside with our Jammieโ€™s on and find fun new activities โค๏ธ #risewithraedyn #pfeiffersyndrome #craniosynostosis #trachbaby #medicallycomplex #inclusion #speechdelay #boyswillbeboys #acceptance
๐Ÿคž we are home before #newyears ๐Ÿค #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
๐Ÿ˜Œ๐Ÿ’…๐Ÿป#CapCut #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Hallelujah. IG is too stuffy for us ๐Ÿ˜‚ #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Not sure who this challenged most.. her or my type A personality ๐Ÿ‘€๐Ÿ˜‚ +  #oralaversion #speechtherapy #feedingtherapy #tubie #feedingtube #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
Well that was extremely unexpected ๐Ÿ˜‚ #advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
A diagnosis is only a word and set of perceived symptoms - not all encompassing, defining, or damning ๐ŸคŸ๐Ÿผ๐Ÿค#advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
#advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters
#advocatelikeamother #micropreemie #iugr #iugrbaby #25weeker #developmentaldelay #ROP #nystagmus #bronchopulmonarydysplasia #chroniclungdisease #congenitallymphaticmalformation #vascularanomoly #lymphaticmalformation #tracheomalacia #gtube #medicallycomplex #trachbaby #medicalmama #trach #hepatoblastoma #cancer #livercancer #inclusionmatters #cptsd #birthtrauma #medicaltrauma #activegrief #chronicdisappointment

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