vascularcompression hashtag performance

ib @georgia🫶🏼 i honestly believe without tik tok, i would have never got answers to my chronic debilitating stomach pain. i would probably still be suffering with no answers being told i am crazy. this app means everything to me and so many others. #superiormesentericarterysyndrome #smas #smasyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gastroparesiswarrior #paralyzedstomach #clevelandclinic #chronicillness #chronicpain #chronicstomachpain #fyp #foryou #fypage #foryoupage

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We really do end up parenting our parents.Im over here on TPN and Im tired mmmkay #help #momlife #dexcom #vascularcompression #medicallycomplex #thebodykeepsscore #smas #gastroparesis #tpn

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#gastroparesis #chronicillness #vascularcompression #smas #tpn #paralyzedstomach #medicallycomplex #thebodykeepsscore

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I can’t tolerate meat, much dairy and hardly any fluid bc it just sloshes in my belly for hours. I feel like I need a @Ninja Slushie Machine I’m gonna try to get protein in but it makes me feel terrible. Help #gastroparesis #chronicillness #vascularcompression #smas #tpn #paralyzedstomach

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Let’s get it #chronicillness #cna #momlife #gastroparesis #vascularcompression #smas #tpn #paralyzedstomach

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#hapoynewyear #newyears #newyearnewme #youarenough #godlovesyou #youarestrong #accomplishment #youareloved #youarestrong #vcs #vasculardisease #vascularcompression #intestinaldiseases

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i needed to post a bit of a vent. things have been so up and down recently #ehlersdanlos #mals #vascularcompression #pots #crohnsdisease #ibd #gjtube #portacath #chronicillness #centralline

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I hate the ‘I don’t do - bc it’s giving in’ comments. Even if they aren’t directed at me. Forcing your body to do things it’s YELLING at you not to do, should not be a point of pride. But for so many, it is. Using mobility aids, relying on medication, chosing not to drive due to brain fog, using a handicap placard, etc are not ‘giving in’. It’s not weak to find ways to make the world more accessible and to adapt and overcome the many challenges that come along with having a struggling body. Be kind to yourself. And overusing your body isn’t being kind to yourself. I honestly don’t find pride when ppl tell me that stuff, I find sadness. You don’t deserve to suffer just for the sake of being ‘normal’ whatever tf that means. #heds #hEDS #brainfog #chronicillnessawareness #cptsd #dissociation #vascularcompression #painmanagement #pots #chronicpain #malnutrition #disabled #MentalHealth #ehlersdanlos #mals #tubie #smas #mobilityaid

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#onthisday A series of photos: tayler laying on a bed in a doctors office and the text reads, “ December is vascular compression awareness month: 1. Tayler, a young thin white woman, taking a picture in the mirror of her abdominal incision. Thr text says, "MALS." 2. Tayler in a hospital bed crying. Text, "symptoms: -epigastric pain -burning pain while eating -pain when breathing -pain during exertion -early satiety -nausea -feeling like thr*wing up" 3-6. Various photos of tayler eating. Note app that says, "Immediately after: - Ate a whole banana (usually causes pain), chili with crackers, goldfish, apple sauce, and a 7-up with no pain and no nausea. Pressed on the area and there was no pain or discomfort. Did sit-ups to try and recreate pain and could not recreate it. Could take deep diaphragmatic breathes with no pain and expand my lungs more than usual. 4 hours, felt a little pain returning when I press on the area. 8 hours later, had 2 burger sliders and popcorn chicken with a milkshake and NO PAIN OR NAUSEA. Next day, at 24 hour mark, ate a small bowl of spaghetti and was already in pain and feeling full. 29 hours after, tried to eat a hot dog and could only take a few bites. Got painful epigastric hiccups for the next hour. 31 hours after, Pain when breathing and referred pain to left side. 2 more episodes of painful epigastric hiccups diagnosis process: -ultrasound -СТА -celiac block -ultrasound showed elevated velocities -СТА showed compressed artery -celiac block eliminated pain for 24 hours diagnosed: Sept 2022 celiac block: Dec 2022 surgery: Aug 2023 #VascularCompression #EDS #MALS #VascularCompressionAwareness #medianarcuateligamentsyndrome