mayoclinicmn hashtag performance

So…yeah. This was my Mayo Clinic sleep study! They were definitely thorough! 😅 Took 90 minutes to get all the electrodes glued under all my hair, measured out into the many spots carefully, and then glued with a glue like nail polish. Then extra gel to conduct better, and lots of tape on my body And 30 more minutes to get me hooked up once I was tired enough to try and sleep. And waking me to ask me to sleep on my back (I’m a side sleeper) 😵‍💫 Needless to say I did NOT sleep much. I think about 3.5 hours total! And it’s no wonder why!🤷🏼‍♀️😅 The EEG measures brain waves as we sleep, and can rule out things like seizures and neurological issues, so it was worth it. Man it’s tough when you just cannot sleep! And trying to figure out WHY is such a complex puzzle. We’re putting the pieces together a little at a time, and this was one big piece. Met with a new Dr right after for initial results, & will share in next reel. Then straight to airport for a long day of traveling home. 🥱 I’ll certainly sleep well in my own bed, wire free, tonight!😴 ❓What do you think? 😅Pretty glam right? Questions? What’s yours been like? What sleep issues do you have? What helps? #sleepstudy #mayoclinicmn #lifeafterbreastcancer #breastcancerwarrior #menopauselife #chronicwarrior #breastcancersurvivor #ehlersdanlossyndrome #mastcellactivationsyndrome #potssyndrome #icantsleep #thisishowwegrow

Tomorrow early I’m off to the freezing 🥶 town of Rochester Mn to visit Mayo Clinic’s sleep medicine clinic. Cancer, chemo, surgeries, forced menopause after hysterectomy (because I’m #brcapositive ) have messed up my sleep immensely. 😴 It’s been like this for 5 years, since chemo, and I’m finally getting it looked into. I’m praying they can figure out why I jerk all night long and wake up all the time (like every 30 minutes sometimes!) so I can get some actual sleep and not feel so exhausted all the time. 🙏🏻 Of course, that could be because of the #mastcell or #pots or #ehlersdanlos too; it’s so hard to know what causes what! I just know that I’ve been waiting a long time to do this, and I’m hopeful it will lead to some answers and improvement. Wish me luck! 🍀 ❓Tell us about your sleep medicine experiences, and if you’ve heard of #sleepmyoclonus I’d love to know what you know! 👇🏻 #breastcancerwarrior #lifeafterbreastcancer #chronicwarrior #sleepmedicine #sleepstudy #mayoclinic #mayoclinicmn #potssyndrome #mastcellactivationsyndrome #ehlersdanlossyndrome #lifeafterchemo #thisishowwegrow

I’m about to start my sleep study, & I’m feeling so much calmer about it all because of what I explained here. 😌 These things have been going on since breast cancer treatment, especially all the surgeries, but I’ve always had so many other huge issues that sleep was put on the back burner. Now it’s time to figure this out. And these 4 things I mention in the video are potential factors, causes, or complexities with my sleep. Above all it felt so good to have 2 Drs spend 1.5 hours today, validate these are very real and serious concerns, and say, “We’re going to figure this out & help you.”🙏🏻 For now, sweet dreams to all and hopefully a “normal” (not great”) night’s rest for me so we can get to the bottom of this!🤞🏻😴 ❓Ever fear not being believed? Deal w sleep issues? Finally get a Dr who can & Will help? Tell us👇🏻 #mayoclinicmn #sleepstudy #breastcancerwarrior #lifeafterbreastcancer #potssyndrome #chronicwarrior #mastcellactivationsyndrome #ehlersdanlossyndrome #thisishowwegrow

Mayo Clinic has the BEST blood work system I’ve ever seen. And it STILL took 3 nurses and 45 minutes to get my blood work done. 😵‍💫 That’s life after chemo, my friends! Especially when u didn’t have a chemo port. (Dr’s idea; seemed like a good one at the time!) 😳😅 Every single time the techs don’t believe that I’m THAT bad of a stick. I mean, they’re really great at their job!👏🏻 And here at #mayoclinicmn they have a huge waiting room and call people every 30 seconds or so to go back, take their blood, and then put it on a conveyor belt that takes it to be tested next door right away! Usually get results in an hour or so. It really is impressive! And still mine is a huge ordeal involving 3 nurses, heat, syringes, 3 pokes w digging around and me laying down at one point because well, a girl can only take so much!😅 We got it done. And that’s a win in my book! Now I crash and prep for 2 appointments tomorrow. And feel grateful no more blood work for a while! They always believe me when we’re done. 😉 Music: I Ain’t Worried about It ❓What’s life after cancer or chemo like for you? Blood work? Questions? Love? ❤️ #breastcancerwarrior #lifeafterbreastcancer #lifeafterchemo #breastcancerjourney #breastcancerjourney #breastcancerjourney #mastcellactivationsyndrome #potssyndrome #chronicwarrior #ehlersdanlossyndrome #thisishowwegrow