edsandco hashtag performance
#edsandco is a vibrant TikTok hashtag representing a community focused on eating disorders, mental health awareness, support, recovery journeys, sharing experiences, promoting understanding, fostering connections, and encouraging healthier lifestyles.
!["if you'd be anxious about it I wouldn't even do it, I'm certain this is psychosomatic" "EMGs aren't fun and if it doesn't show anything I'm confirming this [false] diagnosis [that EMGs can't actually rule out]" "it's going to hurt, we don't have to go through all this if you stop fighting the diagnosis" I was right the whole time, actually #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #malpractice #medicalnegligence #gaslight #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem](/_next/image?url=https%3A%2F%2Fdz59t6y8jvnrr.cloudfront.net%2Fvideo%2F7460321793157434667.jpg&w=1080&q=75)
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"if you'd be anxious about it I wouldn't even do it, I'm certain this is psychosomatic" "EMGs aren't fun and if it doesn't show anything I'm confirming this [false] diagnosis [that EMGs can't actually rule out]" "it's going to hurt, we don't have to go through all this if you stop fighting the diagnosis" I was right the whole time, actually #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #malpractice #medicalnegligence #gaslight #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
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and if anyone has experience with an NJ that is both where it belongs in the jejunom and curved in the stomach, how long did it take to decompress? they're hoping when it relaxes they can uncurve the portion in my stomach and give me some more room to work with on the external portion. thanks, ly guys and I'm explicitly opening up my comments for any and all things that might be helpful. it's gonna be a bumpy ride but I'm on a hypoallergenic ✨infant formula✨ so fingers crossed. you're also so welcome to drop Spotify playlists in the comments and I will go listen #chronicillness #distraction #coping :) #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #gastroparesis #nj #tubefed #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
![never once have I thought "it's not that bad yet, I don't need [whatever intervention I'm trying to avoid] and not found myself critical. OOPS. taking this as a lesson, y'all we are hardwired to avoid medical intervention at all costs. it's how our society raises people. if you're worried you may need something, bother people until you can ask. I waited til 5 members of my care team told me I needed to start looking into this before bringing it to the proper doctor, don't do what I did. be kind to your meatsuit. it's trying its best, it needs help. it takes months to get in with specialists even when already established, pestering through portals and such is allowed if you are not stable. I know I'm not the only one who struggles with that. #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #collegestudent #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #ehlersdanlossyndrome #heds #chronicpain #medicalsystem #gastroparesis #gp #mcas #suspectedmcas](/_next/image?url=https%3A%2F%2Fdz59t6y8jvnrr.cloudfront.net%2Fvideo%2F7455361339075087659.jpg&w=1080&q=75)
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never once have I thought "it's not that bad yet, I don't need [whatever intervention I'm trying to avoid] and not found myself critical. OOPS. taking this as a lesson, y'all we are hardwired to avoid medical intervention at all costs. it's how our society raises people. if you're worried you may need something, bother people until you can ask. I waited til 5 members of my care team told me I needed to start looking into this before bringing it to the proper doctor, don't do what I did. be kind to your meatsuit. it's trying its best, it needs help. it takes months to get in with specialists even when already established, pestering through portals and such is allowed if you are not stable. I know I'm not the only one who struggles with that. #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #collegestudent #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #ehlersdanlossyndrome #heds #chronicpain #medicalsystem #gastroparesis #gp #mcas #suspectedmcas
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being friends with people with unstable health is scary. we take up a lot of space emotionally. but a friend reminded me recently: everyone dies. everyone gets sick, everyone becomes disabled if they are so lucky to live long enough, everyone breaks, everyone heals, everyone dies. remember to spend time with the people you love now so that when shit hits the fan you remember that we aren't just our illnesses. oh, and my username is the same on Instagram, speaking of shit hitting the fan #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem
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ever had a doctor tell you to your face you aren't worth helping because you'll just break again? trust us, we know how bad it gets. heart goes out to everyone feeling like the more they get care they less themself they are, we're in the trenches this holiday season lmao #chronicillness #tired #spoonie #zebra #hypermobile #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #jointinstability #ehlersdanlossyndrome #heds #hypermobility #malignanthypermobility #jointissues #jointpain #chronicpain #medicalsystem #gastroparesis #drhouse suspected #mcas #gjtube
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