periodicparalysis hashtag performance
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2.5k
Used to Zumba for hours, run for fun, walk 5-7 miles a day (from working 3 jobs)...now doing simple things like showering, making food, shopping, standing up, conversations, etc. exhaust me (and my body). *this clip was from half a cup of standard coffee, and it paralyzed me Nobody ever plans on being chronically ill. It happens with no warning, and all of a sudden your life is changed forever. You have to learn what your new limits are and how to accomodate your life. If anyone is dealing with this, please know you are not alone! You got this, and the disability/chronic illness community is here for you🫶🏻🫶🏻🫶🏻 #pots #potssyndrome #spoonie #chronicillness #dysautonomia #periodicparalysis #disability #disabilityawareness
505.0
Don’t get me wrong, I have sooooo far to go and I am so tired all the time but I’m starting to see myself again. Call it effects of chronic illness, call it about being around better people. I dunno, I don’t care. It’s nice. #chronicillness #systemicmastocytosis #periodicparalysis #epilepsy #mitochondrialdisease #autoimmune #narcolepsy #pots #eds #polg #dysautonomia #cptsd #mentalhealthmatters #bodydysmorphia #chroniccancer #ayvakit #d816v #mastcelldisease #ivig #scig #neuroautoimmune #cataplexy
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