Kyra

nottooraretocare hashtag performance

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educating people is the first step. the medical community is failing miserably so it’s up to us. #ehlersdanlos #ehlersdanlossyndrome #nottooraretocare #invisibleillness #chronicillness #chronicillnesswarrior #hEDS
Be grateful for your health because it can be taken from you so quickly and many people don’t realize that. #dysautonomia #invisibleillness #potssyndrome #potsawareness #potssyndromeawareness #chronicillnesswarrior #ehlersdanlos #nottooraretocare #chronicfatigue #hEDS #mecfs
It’s always so hard when someone I haven’t seen in awhile asks me: “how are you?” because they don’t know how much sicker i’ve gotten. Last time they checked in I was much less disabled, and it can be hard to explain that simply within the span of a short conversation. *obviously there’s nothing wrong with asking someone you haven’t seen in a long time how they are. it’s just one of the ways people with chronic illness live differently.* #dysautonomia #chronicillnesswarrior #invisibleillness #potssyndrome #potsawareness #ehlersdanlos #nottooraretocare #chronicfatigue #mecfs #chronicillness
draft until I film tomorrow:) What do you guys wanna see more of? #dysautonomia #chronicillnesswarrior #invisibleillness #potssyndrome #potsawareness #ehlersdanlos #nottooraretocare #chronicfatigue #mecfs #chronicillness #potssyndromeawareness #ehlersdanlossyndrome
this song also is quite fitting as smas loves trying to 💀me and so many other people. SMAS HATE CLUB!! also apologies for being so inactive, things are rough rn and im just trying to focus on anything other than my health. unfortunately,  my SMAS is quite angry rn just in time for SMAS awareness day😭cant wait for the day i can post about SMAS and all compressions fully for awareness and not actively having them  some amazing people fighting this condition alongside me: @kenz🐞 @pey @alise @hailey @brianna @basically brooke @vicki:) @kiera!! @elle ☮︎︎ @trin❤️‍🔥 and so so many others that my brain is forgetting. never too rare to care💜 ##SMAS##superiormesentericarterysyndrome##smasawareness##smasawarenessday##wilkiesyndrome##SMAsyndrome##duodenumcompression##vascularcompression##avcs##vcs##vascularcompressionsyndromes##feedingtubeawareness##gtube##jtube##tpn##totalparenteralnutrition##ivnutrition##centralline #nottooraretocare
this audio really stood out to me. we always take good health for granted until one day it’s gone. #dysautonomia #invisibleillness #potssyndrome #potsawareness #potssyndromeawareness #chronicillness #ehlersdanlos #chronicillnesswarrior #nottooraretocare #mecfs
Replying to @CarGuy And since we apparently need to go back to school for spelling, we can also learn about empathy and ‘inside thoughts’ too! #dysautonomia #invisibleillness #potssyndrome #potsawareness #potssyndromeawareness #chronicillnesswarrior #ehlersdanlos #nottooraretocare #mecfs #kindness #empathy
a literal miracle I'm not 💀🙏🏼🙌🏼 #chronicillness #incurableillness #raredisease #nottooraretocare
this account has become such a big part of my life. I still have hope but if this is truly goodbye I just wanted to say thank you so much to everyone that made this account possible🫶🏼 I love this community and will truly never forget the wonderful memories and connections i made with all of you🤍 if you’d like to keep up with my life my instagram is: brookisliving, and i’m considered maybe making a second account to post content similar to what I posted on here, but if that happens my current instagram will let you know :) i love you guys. thank you for being here. #chronicillness #potssyndromerecovery #dysautonomia #invisibleillness #ehlersdanlos #chronicillnesswarrior #nottooraretocare

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