Kyra

smasawareness hashtag performance

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reaction so bad i put ts on my allergy list  #chronicillness #chronicillnessawareness #pots #potsawareness #heds #hedsawareness #ehlersdanlossyndrome #mcas #mcasawareness #dysautonomia #dysautonomiaawareness #mals #malsawareness #smas #smasawareness #pcos #pcosawareness #gastroparesis #gastroparesisawareness #epilepsy #epilepsyawareness #pnes #pnesawareness #feedingtubeawareness #gtube #meangene #raredisease #rarediseaseawareness #crps #crpsawareness #chronicpain #chronicfatigue
superior mesenteric artery syndrome  awareness day 💜🦋 just a little glimpse of my battle/ journey with smas!  i had undiagnosed smas for 5 years after constant dismissal from doctors and not being believed. and today i celebrate my 2nd year being diagnosed with smas.  •a day dedicated to smas means so much coming from a girl who never believed she would get answers to her pain. a girl who was told she had to live with IBS. a girl who was told she was crazy and all her tests were “normal” •smas day makes me and so many others feel seen, heard, valued, respected, and have hope. this brings awareness to so many.  •i’m here for you, i see you. i know your pain. never give up. always advocate. there’s light at the end.  •my journey with smas seems never ending with a 2nd surgery in may. but i know there’s hope. 💜🦋 H.O.P.E.  #smas #smasawarenessday #smasawareness #superiormesentericarterysyndrome #vascularcompression #vascularcompressionsyndromes #mals #gastroparesis #gp #chronicillness #wearpurple #hope #spoonie #fyp #foryou #stomachpain #smasyndrome #gastroparesiswarrior #foryoupage
this song also is quite fitting as smas loves trying to 💀me and so many other people. SMAS HATE CLUB!! also apologies for being so inactive, things are rough rn and im just trying to focus on anything other than my health. unfortunately,  my SMAS is quite angry rn just in time for SMAS awareness day😭cant wait for the day i can post about SMAS and all compressions fully for awareness and not actively having them  some amazing people fighting this condition alongside me: @kenz🐞 @pey @alise @hailey @brianna @basically brooke @vicki:) @kiera!! @elle ☮︎︎ @trin❤️‍🔥 and so so many others that my brain is forgetting. never too rare to care💜 ##SMAS##superiormesentericarterysyndrome##smasawareness##smasawarenessday##wilkiesyndrome##SMAsyndrome##duodenumcompression##vascularcompression##avcs##vcs##vascularcompressionsyndromes##feedingtubeawareness##gtube##jtube##tpn##totalparenteralnutrition##ivnutrition##centralline #nottooraretocare
i’ve been lucky enough to be off tube feeds for a while but still can’t absorb meds orally 💔 i’m so thankful for the little peices of plastic that have kept me alive and have allowed me to meet my amazing friends and my wonderful husband! that hospital changed me at my core and i left a part of me there. #chronicillness #chronicillnessawareness #pots #potsawareness #heds #hedsawareness #ehlersdanlossyndrome #mcas #mcasawareness #dysautonomia #dysautonomiaawareness #mals #malsawareness #smas #smasawareness #pcos #pcosawareness #gastroparesis #gastroparesisawareness #epilepsy #epilepsyawareness #pnes #pnesawareness #feedingtubeawareness #gtube #meangene #raredisease #rarediseaseawareness #crps #crpsawareness #chronicpain #chronicfatigue
Rowdies story!  #fightlikerowdie  #raredisease #rarediseaseawareness #superiormesentericarterysyndrome #smas #smasawareness #reposts #share
Rowdies journey lately. Unbearable pain she puts up with every single day with having #superiormesentericarterysyndrome  #smas #smasawareness #fightlikerowdie #girlsjustwanttohavefun
CRPS, vascular compressions, and medical gaslighting will be the death of me #chronicillness #chronicillnessawareness #pots #potsawareness #heds #hedsawareness #ehlersdanlossyndrome #mcas #mcasawareness #dysautonomia #dysautonomiaawareness #mals #malsawareness #smas #smasawareness #pcos #pcosawareness #gastroparesis #gastroparesisawareness #epilepsy #epilepsyawareness #pnes #pnesawareness #feedingtubeawareness #gtube #meangene #raredisease #rarediseaseawareness #crps #crpsawareness #chronicpain #chronicfatigue

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