selfcath hashtag performance

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let's talk about the ooky parts of taking care of bodies that don't work right. it's scary to not know this stuff! my wonderful friend @Brie helped me learn what I needed to know and I've had a few people reach out and ask questions, scared because they may be starting soon. I wish it wasn't so scary, and I don't think it has to be. If I can answer anything, let me know. obviously I'm not gonna show a real body, but I'm comfortable using medical terminology and converting to layman's terms. were you scared when you started cathing? what could have made it easier? #neurogenicbladder #spinalcordinjury #selfcath #selfcatheterization #isc #fisc #catheter #catheterization #chronicillnesscommunity #gastroparesis #mcas #tubefed #gjtube #surgicalfeedingtube #chronicillness #tired #spoonie #zebra #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #disabled #ehlersdanlossyndrome #chronicpain #medtok

let's talk about the ooky parts of taking care of bodies that don't work right. it's scary to not know this stuff! my wonderful friend @Brie helped me learn what I needed to know and I've had a few people reach out and ask questions, scared because they may be starting soon. I wish it wasn't so scary, and I don't think it has to be. If I can answer anything, let me know. obviously I'm not gonna show a real body, but I'm comfortable using medical terminology and converting to layman's terms. were you scared when you started cathing? what could have made it easier? #neurogenicbladder #spinalcordinjury #selfcath #selfcatheterization #isc #fisc #catheter #catheterization #chronicillnesscommunity #gastroparesis #mcas #tubefed #gjtube #surgicalfeedingtube #chronicillness #tired #spoonie #zebra #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #disabled #ehlersdanlossyndrome #chronicpain #medtok

Replying to @chronicallycal I started cathing at least 6 months after when I should have started, and about 4 months BEFORE my urodynamics study (which was last week). the misconception that I had was that I didn't need management before testing. I'm currently presumed neurogenic bladder with confirmed high pelvic tone. I will say, it's insanely difficult IME to cath with active high tone but! my tone got better after I started having less constant severe retention. a lot of the tone for me came from a response to the breakthrough/overflow incontinence. ask your doctor, of course, but I'd say if you're thinking about it it's time to at least look into it with your care team. it definitely changed the quality of my life massively, and it's a lot easier to work on solutions when I'm not spending every moment trying to manage my bladder #neurogenicbladder #incontinence " #taboo " #selfcath #selfcatheterization #isc #chronicillnesscommunity #gastroparesis #mcas #tubefed #gjtube #surgicalfeedingtube #chronicillness #tired #spoonie #zebra #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #disabled #ehlersdanlossyndrome #chronicpain #medtok

Replying to @chronicallycal I started cathing at least 6 months after when I should have started, and about 4 months BEFORE my urodynamics study (which was last week). the misconception that I had was that I didn't need management before testing. I'm currently presumed neurogenic bladder with confirmed high pelvic tone. I will say, it's insanely difficult IME to cath with active high tone but! my tone got better after I started having less constant severe retention. a lot of the tone for me came from a response to the breakthrough/overflow incontinence. ask your doctor, of course, but I'd say if you're thinking about it it's time to at least look into it with your care team. it definitely changed the quality of my life massively, and it's a lot easier to work on solutions when I'm not spending every moment trying to manage my bladder #neurogenicbladder #incontinence " #taboo " #selfcath #selfcatheterization #isc #chronicillnesscommunity #gastroparesis #mcas #tubefed #gjtube #surgicalfeedingtube #chronicillness #tired #spoonie #zebra #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #disabled #ehlersdanlossyndrome #chronicpain #medtok

Replying to @mias_lyfe TLDR; love love love, I just wish they came in my size 🥲 #catheter #selfcath #luja #coloplast #speedicath #compactcatheter #chronicillnesscommunity #gastroparesis #mcas #tubefed #gjtube #surgicalfeedingtube #chronicillness #tired #spoonie #zebra #hypermobileehlersdanlossyndrome #ehlersdanlos #paraplegic #sci #paralyzed #tetheredcord #tetheredcordsyndrome #college #fulltimewheelchairuser #wheelchairuser #nonambulatorywheelchairuser #babewithamobilityaid #edsandco #disabled #ehlersdanlossyndrome #chronicpain #medtok

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