invisibleillnessawareness hashtag performance
#InvisibleIllnessAwareness promotes understanding and compassion for those living with unseen health challenges. It highlights the struggles, encourages dialogue, and fosters community support, aiming to raise awareness of diverse chronic conditions.
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If you want to see part 1, check out this video! @Kit ✨♿️ And if you want to see part 2, check out this video! @Kit ✨♿️ MCAS stands for mast cell activation syndrome and can come with a WIDE variety of symptoms and presentations. Disclaimer, having these symptoms doesn’t automatically mean you have MCAS, there are other possible conditions that present similarly so it is worth getting checked out and speaking to an allergist or immunologist if you’re concerned 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Disclaimer, this is my personal experience, MCAS does vary from person to person and there are a variety of severities, all the way up to anaphylactic reactions. MCAS stands for mast cell activation syndrom, this is a condition where the mast cells responsible for protecting the body from pathogens are overactive and respond oftentimes without an obvious trigger, releasing histamine and other signals to activate your immune system. This can cause a wide array of symptoms, but the best way I can describe it as someone who has it, it feels like I can have an allergic reaction to anything at anytime, regardless of if I’m actually allergic and even if I’ve never had a reaction to that particular thing before. It can be a real whirlwind 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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If you want to learn more about MCAS, what it is and how it works, check out this video! @Kit ✨♿️ And if you want to learn more about how MCAS presents and the types of symptoms those with MCAS experience, check out this video! @Kit ✨♿️ Having these symptoms doesn’t automatically mean you have MCAS, this is just my experience with this condition and the things I used to say before realizing I had it. There are other conditions that look similar to MCAS but with different underlying mechanisms so it’s important to speak to a doctor if you’re concerned 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Spoon theory is a metaphor to show how those of us with chronic illness and disability have limited energy for daily tasks. Spoons are meant to show how much energy someone has and how much energy something takes comparatively. If you’re curious and want to learn more, check out this video! @Kit ✨♿️ #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #spoontheory #spoonie #spooniesoftiktok #spoonielife
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ Disclaimer, this is my own personal experience w/ MCAS, there is a wide variety of symptoms and each person experiences it differently. Having these symptoms doesn’t automatically mean you have MCAS, but these are possible symptoms of MCAS in my experience 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Cleaning a pretty clean site this time around. Could feel the small pocket starting but overall was one of the best ones yet. This was 5+ wks! #Subqremo #sickfightsback #invisibleillnessawareness #spoonielife #noteverydiseaseisvisable #chronicillnessawareness #heartfailure #pulmonaryhypertension #chronicillnesswarrior #pulmoaryarterialhypertension #rarediseaseawareness #phighter #MentalHealth #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #patientleader #patientadvocate #butyoudontlooksick #clincialtrial #pulmonaryhypertensionadvocate #notalldisabilitiesarevisible #chroniccommunity
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Who else has had a hard time explaining how you randomly can’t eat gluten anymore after years of gorging with no problem? 😅🙋♀️ I honestly think one of the hardest parts of celiac disease is how randomly it can activate and turn your life upside down, seemingly overnight. 🙃 And since it still takes on average 6-10 years for people to get an accurate celiac diagnosis, many suffer for years without knowing the case either. What else do you wish more people would know about celiac disease or eating gluten free? I wish more people realized that cross contact is a HUGE issue with celiac so we really can’t just have “one bite.” 🤦♀️ PS — the new gluten free mac and cheese from @VELVEETA is truly AMAZING & at Target, Amazon, Publix & more. 😍😍 And you can find even more gluten free memes, gf product round ups and reviews, celiac tips, etc on my page. 💙 #nogluten #celiacdisease #celiaclife #glutenintolerance #celiactiktok #autoimmunedisease #autoimmune #chronicillnessawareness #coeliac #invisibleillnessawareness #celiacos #glutenfreefood #glutenfreepasta #glutenfreemeals #autoimmune
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ And disclaimer, just bc you have these problems doesn’t automatically mean you have hEDS, this is simply my experience looking back on my life in retrospect now that I have a diagnosis and realizing just how many little things were related to my conditions 😅 however, if you want to learn more information about EDS, I would highly recommend the Ehlers Danlos Society website 🙌 it has a ton of useful information, resources, the diagnostic criteria, and a providers directory ✨ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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Replying to @👑Ruler of Raccoons 🦝 I hope this helps! Keep an eye out for part 2 where I’ll be discussing all the different symptoms that go along with MCAS as well as some of the different things that can cause these reactions 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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And I’m usually the type to want a deeper massage so I thought this was going to be perfect 😅🤣 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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If you want to learn more about MCAS, check out this video @Kit ✨♿️ And if you want to learn more about the possible symptoms that go along with MCAS, check out this video! @Kit ✨♿️ I will be making another video soon talking about how I got diagnosed and how the MCAS diagnostic process operates, so keep an eye out if you’re interested 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome
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Replying to @minimosa251 I hope this makes sense, and sorry for using your comment for this 😅 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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Replying to @👑Ruler of Raccoons 🦝 I hope this helps! Sorry for using your comments twice 😅🙌 If you want to see part 1, check out this video @Kit ✨♿️ MCAS stands for mast cell activation syndrome and is responsible for the overactivation of mast cells which can produce sporadic and often inconsistent allergic reactions. These symptoms can be caused by conditions other than MCAS so be sure to see an allergist or immunologist if you’re concerned. #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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If you’re curious and want to see part 1, check out this video! @Kit ✨♿️ And quick disclaimer, this is my personal experience and things I went through bc of my POTS. Having these symptoms doesn’t necessarily mean you have POTS. But, if you’re curious and want to learn more, I highly recommend checking out the Dysautonomia International website, it has a ton of useful information, resources, and a providers directory 🙌 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #dysautonomiapots
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Being chronically ill can be so physically, mentally, and emotionally exhausting 😖 #creatorsearchinsights #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride
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How I am securing my Neria with a sugar patch since the adapter is bigger than the others. #Subqremo #sickfightsback #invisibleillnessawareness #spoonielife #noteverydiseaseisvisable #chronicillnessawareness #heartfailure #pulmonaryhypertension #chronicillnesswarrior #pulmoaryarterialhypertension #rarediseaseawareness #phighter #MentalHealth #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #patientleader #patientadvocate #butyoudontlooksick #clincialtrial #pulmonaryhypertensionadvocate #notalldisabilitiesarevisible #chroniccommunity
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Replying to @Allergic to People If you want to learn more about what MCAS is, check out this video @Kit ✨♿️ And if you want to learn more about the possible symptoms and triggers that go along with MCAS, check out this video @Kit ✨♿️ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #mcas #mcasawareness #mastcellactivationsyndrome
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My mom has always called me “friend of the friendless” and as a kid, I struggled with that concept a lot. I felt like I could only make friends if they had no other options, I could only be loved as a last resort. But now, I’m starting to see what she meant 💕 #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #cptsd #cptsdawareness #cptsdrecovery #cptsdsurvivor #cptsdhealing
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There are a lot of frustrations that I have about being chronically ill, but this one is one of the worst. I just have to wait as my symptoms get worse and I’m able to do less and less while my meds bounce around states for no reason. And these are meds that actually worked for me and helped me across multiple avenues of my chronic conditions, I can feel symptoms coming back that I’ve had under wraps for years and there’s nothing I can do but wait 😖 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disabled #disability #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #venting
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Replying to @🦇🧚🏻♀️CastellVeinya ✍️ the list discussed in the video this is attached to is the diagnostic criteria for hEDS, so all of those “random” questions and “random” positions my doctor was putting me through were all part of the list 🙌 if you’re curious and want to learn more, the Ehlers Danlos Society website is a great source of information and resources ✨ #chronicillness #chronicallyill #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #connectivetissuedisorder
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